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Author Ward, C.R.
Title Children matter: What is important to the child living with a life-threatening illness Type Miscellaneous
Year 2005 Publication Abbreviated Journal (down) Victoria University of Wellington Library
Volume Issue Pages
Keywords Children; Nurse-patient relations; Nursing; Chronically ill
Abstract When a child lives with a life-threatening illness there is a range of emotions that affect the child, family and people close to the child. This study utilises a narrative approach to explore what the child puts emphasis on in what is important to them as they live with serious illness. The study incorporates the nurse as narrator with the 'narratives' of the children integrated into her reflections to gain a broader understanding. The focus is on listening intently to the spoken needs of children, their story and the meaning they make of their situation when they live with their illness. 'Children' in this study are between the ages of six years to 15 years. The aim of this research is to provide a clear understanding of the lived experience, which may illuminate the needs of the child and what is required throughout the time of illness; therefore informing health professionals of a culture of care that may support these needs. A broader understanding and deeper insight into the complexity of children living with life-threatening illnesses provides a basis for the development of sensitive, humanistic quality nursing care for both the child and his/her family, this then enhances the potential for best practice for children living with a life-threatening illness.
Call Number NRSNZNO @ research @ Serial 577
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Author Wilson, H.V.
Title Surveillance or support: Divergent discourses in Plunket nursing practice Type
Year 2000 Publication Abbreviated Journal (down) Victoria University of Wellington Library
Volume Issue Pages
Keywords Public health; Children; Community health nursing; Plunket
Abstract Plunket nurses are New Zealand child health nurses who work in the community with the families of new babies and preschool children. Their work is called child health surveillance and this is considered to involve routine and unproblematic practices which are generally carried out in homes and clinics in the context of a relationship with the child's mother (Ministry of Health 1996; Royal New Zealand Plunket Society 1997). However, evidence in the literature that surveillance can have implications for power relations throws doubts on official claims that the relationship between the mother and nurse operates as a partnership (Trout and Polaschek 1996). The purpose of this thesis was to explore the way in which surveillance is constituted within the discourses of Plunket nurses and to examine these discourses for any implications of unequal power relations. Foucauldian discourse theory and poststructuralism, which informed this thesis, provided the opportunity to challenge assumptions about power and knowledge in the child health context. Analysis of the discourses generated by interviews with five Plunket nurses revealed that, contrary to the claims in the official literature, the relationship between the Plunket nurse and the mother is not that of an equal partnership but is constituted in various and unexpected ways. It was through the nurses' discourses of surveillance that the power relations underpinning this relationship were surfaced. While these discourses suggested that many mothers who use the nursing service are actively involved on their own terms, there are a number of women for whom the surveillance activities of the nurse have been shown to be particularly intrusive (Mayall 1986; Clinton 1988; Bloor and McIntosh 1990; Knott and Latter 1999). It may be primarily this unwelcome surveillance which accounts for the considerable number of women who, the statistics show, cease using Plunket services particularly in the early months. It is perhaps for this reason that the nurses in this study locate themselves as being caught between divergent discourses of support and surveillance. Findings indicate that the resolution of this dilemma by abandoning surveillance practices might improve maternal satisfaction with the Plunket nursing service. The author concludes that a child health service responsive to mothers' stated needs rather than institutional requirements or the nurse's own agenda could lead to a more open and equal relationship between mother and nurse. This relationship would be likely to benefit mothers and babies and, at the same time, enhance both nursing practice and nurses' satisfaction with their work.
Call Number NRSNZNO @ research @ Serial 899
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Author Dickinson, A.R.
Title Within the web: The family/practitioner relationship in the context of chronic childhood illness Type
Year 2004 Publication Abbreviated Journal (down) ScholarlyCommons@AUT
Volume Issue Pages
Keywords Nurse-family relations; Chronically ill; Children
Abstract This study explores the phenomenon of the relationships between practitioners and families who have a child with a chronic illness. Using a heremeneutic phenomenological method informed by the writings of Martin Heidegger [1889-1976] and Hans-Georg Gadamer [1900-2002], this study provides an understanding of the meaning of 'being in relationship' from the perspective of both families and practitioners. Study participants include ten family groups who have a child with a chronic illness and twelve practitioners from the disciplines of nursing, medicine, dietetics, physiotherapy and speech therapy who work with children with chronic illness. Narrative audio-taped interviewing was the means by which the participants told their stories about times that relationships worked well and when they did not. These stories uncover the every day realities of 'being in relationship' and provide another understanding of the relationship between family and practitioner.The findings of this thesis suggest that chronic childhood illness 'throws' families and practitioners together into a web of relationships that must work for the sake of the child. The relationship is primarily conducted between adults. Children are usually excluded. In order to understand and manage the child's illness, practitioners and families 'go around' and act 'in-between' relationships. While the quality of the relationship from the family perspective is not essential to the chronic illness journey, relationships are more successful when practitioners recognise the uniqueness of each family web. The nature of the relationship is often simple, yet it co-exists with complexity. This thesis proposes that a 'companion relationship' between practitioners and family may offer a more effective and satisfying way of working. It also challenges practitioners to consider the voice of children within health care relationships.
Call Number NRSNZNO @ research @ 1253 Serial 1238
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Author Murphy, S.E.E.
Title Through mothers' eyes: The lived experience of caring for a child who has undergone and recovered from a liver transplantation Type
Year 2008 Publication Abbreviated Journal (down) ResearchArchive@Victoria
Volume Issue Pages
Keywords Parents and caregivers; Paediatric nursing; Children; Surgery
Abstract Mothers, whose children had undergone a liver transplant more than one year ago at time of interview and whose children were outpatients of Starship Children's Hospital, were invited to participate in this research. A Heideggerian hermeneutic phenomenological approach, informed by the work of van Manen (1990) was used. Three mothers of children who had received a liver transplant were interviewed to reveal the meanings of the phenomenon – what is the meaning of lived experience of mothers in caring for their child who has undergone and recovered following liver transplantation? Little previous study regarding mothers' lived experience of caring for their child, who had recovered from a liver transplant, was found in the literature. The emerging themes were punctuated with stress being a consistent feature. Utilising Ruddick's (1983) concepts of maternal thinking, the emerging themes were merged within the three interests governing maternal practice; preservation, growth and acceptability. The absolute capacity for attentive love draws the experience together. An essential theme identified out of the analysis was the concept of survival relating to the unique features of liver transplantation and the consequences of liver rejection and failure. The findings contribute to the understanding of the phenomenon, emphasising the need for good support systems for families of children who have undergone transplantation; assistance in the establishment of maternal coping strategies and regular feedback on the children's progress acknowledging the role and care provided by mothers.
Call Number NRSNZNO @ research @ 1242 Serial 1227
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Author Lowson, S.
Title Sacred memories: Creative art therapy for children in grief Type
Year 2004 Publication Abbreviated Journal (down) ResearchArchive@Victoria
Volume Issue Pages
Keywords Children; Grief; Nursing; Terminal care; Psychology
Abstract This paper explores the creative opportunities children might have to attend to their emotions and feelings following the death of a parent, grandparent or close friend. It presents the position that often children are left out of the process of caring for an adult when they are terminally ill and that has long term psychological implications. It also suggests that this has antecedents for the white New Zealand culture that were noted historically. In this research the author describes a personal journey that has shaped her current work as a hospice practice manager. The writer explores literature in psychological aspects of removing children from the dying room, creative therapies and the importance of sacred memories for the living child. The need to create memory that will embrace the child as a cloak enfolds them in their crisis stimulated the writer to offer a text in the personal narrative form. This text is presented in this form to enable other clinicians to access their own memories as survivors of grief in their own families. It is suggested that by enabling children and family to explore the importance of relating in the palliative phase of a person's life journey, good memories are created for the survivors.
Call Number NRSNZNO @ research @ 1245 Serial 1230
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Author Mockford, A.
Title An exploratory descriptive study of the needs of parents after their young child is discharged from hospital following an admission with an acute illness Type
Year 2008 Publication Abbreviated Journal (down) ResearchArchive@Victoria
Volume Issue Pages
Keywords Parents and caregivers; Health knowledge; Children; Maori; Pacific peoples
Abstract This study investigated issues surrounding the high numbers of preventable admissions of young children with acute illnesses, particularly amongst Maori and Pacific children. It focuses on what happens once these children are discharged. Its aims were to find out what the expressed needs of parents were, as they cared for their child, once home. Whilst there has been a small amount of international research undertaken in this area, there is little known about expressed parent need in the New Zealand context. This exploratory descriptive study involved parents of under five year old children, who had been admitted to a hospital, with one of five acute illnesses. Eighteen parents were surveyed over the telephone. This study found the parents expressed a need for reassurance and advice once home, and that they worried about their child getting sick again. It highlighted gaps in discharge planning and support. None of the parents had received a written discharge plan for their child. Only five parents had received either a contact number for advice or a referral back to their primary care provider. This study found that whilst some parents considered their discharge needs had been met, others considered that they had not. Four local discharge practice opportunities to support these families were recommended, these included, providing parents and caregivers with an individualised written discharge plan, giving a contact number for advice after discharge, offering a follow-up phone call in the first 48 hours, and ensuring that all children have a referral back to their primary health care provider. Areas for further research were highlighted, including the need for a larger study to explore and compare the needs of rural and urban parents, and Maori and Pacific parents.
Call Number NRSNZNO @ research @ Serial 1232
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Author Trenberth, D.
Title New Zealand families' beliefs about what constitutes successful management of unsupervised childcare Type
Year 2008 Publication Abbreviated Journal (down) ResearchArchive@Victoria
Volume Issue Pages
Keywords Children; Parents and caregivers
Abstract This study explored what some New Zealand families believe constitutes the successful management of unsupervised childcare. It was designed to increase social understanding and practitioner knowledge of the issue by exploring families' beliefs, practices and perspectives. The researcher was concerned with the professional role nurses may play with this group of children. A qualitative descriptive approach was used to obtain a straight description of successful unsupervised childcare, using the everyday language of the participating families. Data was collected in semi structured interviews with five family groups, and subjected to content and thematic analysis. Findings suggest unsupervised childcare is both choice and solution, though parents are fearful of the legal and social consequences of using it. Context of the care is important, with the child's preference, community context and availability of adults through distal supervision critical components of its success. Trust between parent and child, the use of rules and boundaries to regulate child behaviour, the teaching of skills and strategies to build child competency, and parental support of children while unsupervised are identified by parents as factors linked to success. Parents identify increasing child independence and self responsibility as positive outcomes from the successful use of unsupervised childcare. This study has helped to identify positive factors resulting in good outcomes from which successful interventions could be developed, provides information that will be of particular interest to practitioners and policy makers, and provides a platform to launch larger studies into the issue of unsupervised children.
Call Number NRSNZNO @ research @ 1252 Serial 1237
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Author Sampson, C.
Title The allergy nurse specialist: A proposed nurse-led model of care for children with severe food allergies Type
Year 2006 Publication Abbreviated Journal (down) Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz
Volume Issue Pages
Keywords Children; Nursing specialties; Child health services; Food allergies
Abstract The prevalence of allergic disease has increased significantly in western countries over the last decade. However, the author points to the availability of specialist allergy services in New Zealand being limited to the large cities, resulting in a lack of, or fragmentation of, the allergy-related services in smaller regions. As a public health nurse in Otago working with a rising number of families with severely food allergic children, the author had become aware of the challenges many parents face in accessing accurate information about their child's allergy and the negative impact this has had on them and their child. The purpose of this dissertation is to explore how an Allergy Nurse Specialist (ANS) led service could improve the experiences and health outcomes of the families and children with severe food allergies living in Otago. A critical analysis of the literature on allergy nursing, advanced nursing roles, and related food allergy issues was conducted and applied to the Otago region. Drawing on the 'Nurse with a Special Interest in Allergy' model of nurse-led allergy care outlined by Cross (2005) and the existing Otago District Health Board's (2004) clinical nurse specialist role, the author proposes that an ANS-led model of care, incorporating advanced nursing practice, primary care access and multidisciplinary collaboration could complement the existing allergy related services in Otago. The focus of the ANS's care will be on facilitating timely access to accurate assessment and advice for families regarding the management of their child's food allergies.
Call Number NRSNZNO @ research @ Serial 730
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Author Buxton, J.
Title Factors which may influence parental decisions about childhood vaccinations Type
Year 2007 Publication Abbreviated Journal (down) Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz
Volume Issue Pages
Keywords Immunisation; Practice nurses; Children; Parents and caregivers
Abstract Practice nurses are primarily responsible for the administration of vaccinations in New Zealand, although many other health professionals contribute to the success of the National Immunisation Schedule by providing vaccination information and advice to parents. Vaccination uptake remains relatively low, indicating many parents choose not to vaccinate their children. A literature review was undertaken to gain an understanding of factors which may influence parents when they are making decisions about childhood vaccinations. Four key themes were identified within the literature: Perceived risk; Vaccine safety and efficacy; Child characteristics; and the Influence of health professionals/supporting vaccination structures. Increased knowledge and awareness about influential factors creates opportunities for health professionals and policy makers to develop strategies to increase vaccination uptake. Implications and recommendations are made for practice, with particular emphasis on the role of the primary healthcare nurse.
Call Number NRSNZNO @ research @ Serial 919
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Author Woods, M.
Title Parental resistance. Mobile and transitory discourses: A discursive analysis of parental resistance towards medical treatment for a seriously ill child Type
Year 2008 Publication Abbreviated Journal (down) NZNO Library
Volume Issue Pages
Keywords Nurse-family relations; Parents and caregivers; Pacific peoples; Communication; Children; Chronically ill
Abstract This qualitative thesis uses discourse analysis to examine parental resistance towards medical treatment of critically ill children. It is an investigation of the 'mobile and transitory' discourses at play in instances of resistance between parents, physicians and nurses within health care institutions, and an examination of the consequences of resistance through providing alternative ways of perceiving and therefore understanding these disagreements. The philosophical perspectives, methodology and methods used in this thesis are underpinned by selected ideas taken from the works of Michel Foucault and Pierre Bourdieu and supported by relevant literature in the fields of media, law, children, parenting, caring, serious childhood illness, medicine and nursing. It is argued that from an examination of interview based texts, parental resistance is an omnipresent but transitory occurrence that affects many of the interactions between the parents of seriously ill children and clinical staff. It is maintained that within these interactions, the seeds of this resistance are sown in both critical decision making situations and in everyday occurrences between doctors, nurses and parents within healthcare institutions. Contributing factors to parental resistance include the use of power games by staff, the language of medicine, forms of symbolic violence, the presence or absence of trust between parents and medical staff, the effects of medical habitus, and challenges to the parental role and identity. Overall, it is proposed in this thesis that parents who resist treatment for their seriously ill child are not exceptions to the normative patient-physician relationship.
Call Number NRSNZNO @ research @ Serial 1140
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Author Mahoney, L.
Title Making the invisible visible: Public health nurses role with children who live with a parent with a mental illness Type
Year 2008 Publication Abbreviated Journal (down) NZNO Library
Volume Issue Pages
Keywords Public health; Children; Community health nursing; Scope of practice
Abstract This research uses focus group methodology to examine the public health nursing practice with children living with a mentally ill parent. These children are often neglected, yet are at increased risk of developing mental illnesses themselves. The research data identified the burgeoning impact on public health nurses of such care, and found their role to be primarily assessment and advocacy.
Call Number NRSNZNO @ research @ 1304 Serial 1289
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Author Watson, P, B.
Title Positive pressure intravenous access ports on central venous devices in children: An evidence-based review Type Journal Article
Year 2010 Publication Kai Tiaki Nursing Research Abbreviated Journal (down) NZNO Library
Volume 1 Issue 1 Pages 12-18
Keywords Venous pressure; Central venous pressure; Central venous catheters; Catheter-related infections; Children
Abstract This research aimed to assess the evidence for benefits and risks of positive pressure mechanical valve (PPMV) intravenous access ports on central nervous system devices (CVADs) in children. PPMVs on CVADs have been promoted as preventing occlusion and the need for heparin flushing. A search for primary research to March 2010 was conducted using MEDLINE, EMBASE and CINAHL. There is sufficient evidence that some models of PPMV intravenous access ports on CVADs, when flushed with normal saline, are associated with increased bloodstream infections in children. Further research is required.
Call Number NZNO @ research @ Serial 1340
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Author Garlick, A.
Title Determined to make a difference: A study of public health nursing practice with vulnerable families Type
Year 2006 Publication Abbreviated Journal (down) Massey University Library, NZNO Library
Volume Issue Pages
Keywords Public health; Children; Nurse-family relations
Abstract
Call Number NRSNZNO @ research @ 737 Serial 723
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Author Crawford, R.
Title An exploration of nurses' understanding of parenting in hospital Type
Year 2000 Publication Abbreviated Journal (down) Massey University Library
Volume Issue Pages
Keywords Nurse-family relations; Children; Hospitals; Parents and caregivers
Abstract
Call Number NRSNZNO @ research @ 812 Serial 796
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Author Adams-Smith, P.H.
Title An exploration of issues of primary health services for Taranaki Te Atiawa children based on the expectations and perceptions of their female caregivers Type
Year 2002 Publication Abbreviated Journal (down) http://hdl.handle.net/10063/75
Volume Issue Pages
Keywords Parents and caregivers; Primary health care; Access; Maori; Children
Abstract The intention of this research is, through collaborative discussion and selective conversations, to explore female caregivers' expectations and perceptions of primary health services for some Te Atiawa Maori children. The research process was developed in a partnership between the Maori women participants and the researcher. In addition, two local kuia actively participated in and supported the process. Emancipatory critical social theory underpinned and informed the project. Power relationships between the researcher and the participants can be overtly explored within this theoretical framework. In terms of this particular exploratory study, participatory research appeared to be applicable. The participants are female caregivers of Te Atiawa children. Data collection was done using group interactions and semi-structured interviews in the winter of the year 2000. A thematic analysis of the data was used, in which common themes were identified, compared and discussed. From the analysis of the data of the participants' conversations, key ideas were identified. The major findings have been identified within two main themes. These are: a concept of health is not the same for Pakeha as for Maori, and access issues are still problematic for the participants in this study. Many quotes from the interview participants are included in order to keep the focus of the project on the voices of the women interviewed. In terms of the significant contribution of this research, this study aims to allow voices of female caregivers of Te Atiawa Maori children to be heard. Individual and collaborative interactions offer insights into what is important to them in terms of Maori child health. Clearly, the primary health initiatives promoted by the New Zealand government are not reaching at least some of the people for whom they are intended. The research participants offered their ideas as to how these deficits could be remedied in their community.
Call Number NRSNZNO @ research @ Serial 1216
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