| Records |
| Author |
Ward, C.R. |
| Title |
Children matter: What is important to the child living with a life-threatening illness |
Type |
Miscellaneous |
| Year |
2005 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Children; Nurse-patient relations; Nursing; Chronically ill |
Abstract  |
When a child lives with a life-threatening illness there is a range of emotions that affect the child, family and people close to the child. This study utilises a narrative approach to explore what the child puts emphasis on in what is important to them as they live with serious illness. The study incorporates the nurse as narrator with the 'narratives' of the children integrated into her reflections to gain a broader understanding. The focus is on listening intently to the spoken needs of children, their story and the meaning they make of their situation when they live with their illness. 'Children' in this study are between the ages of six years to 15 years. The aim of this research is to provide a clear understanding of the lived experience, which may illuminate the needs of the child and what is required throughout the time of illness; therefore informing health professionals of a culture of care that may support these needs. A broader understanding and deeper insight into the complexity of children living with life-threatening illnesses provides a basis for the development of sensitive, humanistic quality nursing care for both the child and his/her family, this then enhances the potential for best practice for children living with a life-threatening illness. |
| Call Number |
NRSNZNO @ research @ |
Serial |
577 |
| Permanent link to this record |
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| Author |
Rickard, Debbie |
| Title |
Parents as experts: partnership in the care of the chronically ill children : Margaret May Blackwell Travel Study, Fellowship for Nurses of Young Children, 1999 |
Type |
Report |
| Year |
1999 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
65p. |
| Keywords |
Chronically ill children – home care; Child health services; Paediatric nursing; Community health nursing; Reports |
| Abstract |
Visits paediatric community nursing services in the UK and Australia to report on how specialist and children's community nurses work with parents to deliver health care to children with asthma, diabetes and other endocrine disorders, cystic fibrosis, eczema, cardiac diseases, and liver transplants. Part of the Margaret May Blackwell Scholarship Reports series. |
| Call Number |
NZNO @ research @ |
Serial |
1414 |
| Permanent link to this record |
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| |
| Author |
Jones, Bernadette Doris |
| Title |
Achieving equitable asthma services for Maori |
Type |
Book Whole |
| Year |
2017 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
1v |
| Keywords |
Asthma; Maori children; Primary healthcare; Kaupapa Maori; Maori health; Pou Ora; Maori-centred research |
| Abstract |
Undertakes a qualitative, phenomenological study to explore the experiences of practitioners delivering asthma services to tamariki Maori and their whanau in primary healthcare. Employs a kaupapa Maori methodology in order to provide a Maori perspective to the research. Uses an equity framework in the analysis and interpretation of the results, to ensure alignment with Maori values and aspirations. Interviews 15 doctors and nurses from Maori, mainstream and Very-Low-Cost-Access providers of asthma services. Presents the results using the Pou Ora framework with four main themes: Hauora, Toi Ora, Whanau Ora, and Mauri Ora. |
| Call Number |
NZNO @ research @ |
Serial |
1585 |
| Permanent link to this record |
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| Author |
Moore, Justin |
| Title |
Breaking down barriers in child healthcare (0-5) years. Margaret May Blackwell Travelling Fellowship 2005 |
Type |
Report |
| Year |
2005 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
29 |
| Keywords |
Child health services; Children's Hospitals; Emergency Departments; Drugs; Reports |
| Abstract |
Travels to Australia, Canada, the US and the UK to investigate various methods of procedural sedation for 0-5-year-olds in paediatric Emergency Departments. Describes the types of sedation used and the recovery periods. Transcribes the interviews he conducted with Emergency Department staff in each country. Part of the Margaret May Blackwell Scholarship Reports series. |
| Call Number |
NZNO @ research @ |
Serial |
1427 |
| Permanent link to this record |
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| Author |
Mockford, A. |
| Title |
An exploratory descriptive study of the needs of parents after their young child is discharged from hospital following an admission with an acute illness |
Type |
|
| Year |
2008 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Parents and caregivers; Health knowledge; Children; Maori; Pacific peoples |
| Abstract |
This study investigated issues surrounding the high numbers of preventable admissions of young children with acute illnesses, particularly amongst Maori and Pacific children. It focuses on what happens once these children are discharged. Its aims were to find out what the expressed needs of parents were, as they cared for their child, once home. Whilst there has been a small amount of international research undertaken in this area, there is little known about expressed parent need in the New Zealand context. This exploratory descriptive study involved parents of under five year old children, who had been admitted to a hospital, with one of five acute illnesses. Eighteen parents were surveyed over the telephone. This study found the parents expressed a need for reassurance and advice once home, and that they worried about their child getting sick again. It highlighted gaps in discharge planning and support. None of the parents had received a written discharge plan for their child. Only five parents had received either a contact number for advice or a referral back to their primary care provider. This study found that whilst some parents considered their discharge needs had been met, others considered that they had not. Four local discharge practice opportunities to support these families were recommended, these included, providing parents and caregivers with an individualised written discharge plan, giving a contact number for advice after discharge, offering a follow-up phone call in the first 48 hours, and ensuring that all children have a referral back to their primary health care provider. Areas for further research were highlighted, including the need for a larger study to explore and compare the needs of rural and urban parents, and Maori and Pacific parents. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1232 |
| Permanent link to this record |
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| Author |
Dickinson, A.R. |
| Title |
Within the web: The family/practitioner relationship in the context of chronic childhood illness |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
ScholarlyCommons@AUT |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Chronically ill; Children |
| Abstract |
This study explores the phenomenon of the relationships between practitioners and families who have a child with a chronic illness. Using a heremeneutic phenomenological method informed by the writings of Martin Heidegger [1889-1976] and Hans-Georg Gadamer [1900-2002], this study provides an understanding of the meaning of 'being in relationship' from the perspective of both families and practitioners. Study participants include ten family groups who have a child with a chronic illness and twelve practitioners from the disciplines of nursing, medicine, dietetics, physiotherapy and speech therapy who work with children with chronic illness. Narrative audio-taped interviewing was the means by which the participants told their stories about times that relationships worked well and when they did not. These stories uncover the every day realities of 'being in relationship' and provide another understanding of the relationship between family and practitioner.The findings of this thesis suggest that chronic childhood illness 'throws' families and practitioners together into a web of relationships that must work for the sake of the child. The relationship is primarily conducted between adults. Children are usually excluded. In order to understand and manage the child's illness, practitioners and families 'go around' and act 'in-between' relationships. While the quality of the relationship from the family perspective is not essential to the chronic illness journey, relationships are more successful when practitioners recognise the uniqueness of each family web. The nature of the relationship is often simple, yet it co-exists with complexity. This thesis proposes that a 'companion relationship' between practitioners and family may offer a more effective and satisfying way of working. It also challenges practitioners to consider the voice of children within health care relationships. |
| Call Number |
NRSNZNO @ research @ 1253 |
Serial |
1238 |
| Permanent link to this record |
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| Author |
Trenberth, D. |
| Title |
New Zealand families' beliefs about what constitutes successful management of unsupervised childcare |
Type |
|
| Year |
2008 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Children; Parents and caregivers |
| Abstract |
This study explored what some New Zealand families believe constitutes the successful management of unsupervised childcare. It was designed to increase social understanding and practitioner knowledge of the issue by exploring families' beliefs, practices and perspectives. The researcher was concerned with the professional role nurses may play with this group of children. A qualitative descriptive approach was used to obtain a straight description of successful unsupervised childcare, using the everyday language of the participating families. Data was collected in semi structured interviews with five family groups, and subjected to content and thematic analysis. Findings suggest unsupervised childcare is both choice and solution, though parents are fearful of the legal and social consequences of using it. Context of the care is important, with the child's preference, community context and availability of adults through distal supervision critical components of its success. Trust between parent and child, the use of rules and boundaries to regulate child behaviour, the teaching of skills and strategies to build child competency, and parental support of children while unsupervised are identified by parents as factors linked to success. Parents identify increasing child independence and self responsibility as positive outcomes from the successful use of unsupervised childcare. This study has helped to identify positive factors resulting in good outcomes from which successful interventions could be developed, provides information that will be of particular interest to practitioners and policy makers, and provides a platform to launch larger studies into the issue of unsupervised children. |
| Call Number |
NRSNZNO @ research @ 1252 |
Serial |
1237 |
| Permanent link to this record |
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| Author |
Mahoney, L. |
| Title |
Making the invisible visible: Public health nurses role with children who live with a parent with a mental illness |
Type |
|
| Year |
2008 |
Publication |
|
Abbreviated Journal |
NZNO Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Public health; Children; Community health nursing; Scope of practice |
| Abstract |
This research uses focus group methodology to examine the public health nursing practice with children living with a mentally ill parent. These children are often neglected, yet are at increased risk of developing mental illnesses themselves. The research data identified the burgeoning impact on public health nurses of such care, and found their role to be primarily assessment and advocacy. |
| Call Number |
NRSNZNO @ research @ 1304 |
Serial |
1289 |
| Permanent link to this record |
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| Author |
Watson, P, B. |
| Title |
Positive pressure intravenous access ports on central venous devices in children: An evidence-based review |
Type |
Journal Article |
| Year |
2010 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
NZNO Library |
| Volume |
1 |
Issue |
1 |
Pages |
12-18 |
| Keywords |
Venous pressure; Central venous pressure; Central venous catheters; Catheter-related infections; Children |
| Abstract |
This research aimed to assess the evidence for benefits and risks of positive pressure mechanical valve (PPMV) intravenous access ports on central nervous system devices (CVADs) in children. PPMVs on CVADs have been promoted as preventing occlusion and the need for heparin flushing. A search for primary research to March 2010 was conducted using MEDLINE, EMBASE and CINAHL. There is sufficient evidence that some models of PPMV intravenous access ports on CVADs, when flushed with normal saline, are associated with increased bloodstream infections in children. Further research is required. |
| Call Number |
NZNO @ research @ |
Serial |
1340 |
| Permanent link to this record |
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| Author |
Woods, M. |
| Title |
Parental resistance. Mobile and transitory discourses: A discursive analysis of parental resistance towards medical treatment for a seriously ill child |
Type |
|
| Year |
2008 |
Publication |
|
Abbreviated Journal |
NZNO Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Parents and caregivers; Pacific peoples; Communication; Children; Chronically ill |
| Abstract |
This qualitative thesis uses discourse analysis to examine parental resistance towards medical treatment of critically ill children. It is an investigation of the 'mobile and transitory' discourses at play in instances of resistance between parents, physicians and nurses within health care institutions, and an examination of the consequences of resistance through providing alternative ways of perceiving and therefore understanding these disagreements. The philosophical perspectives, methodology and methods used in this thesis are underpinned by selected ideas taken from the works of Michel Foucault and Pierre Bourdieu and supported by relevant literature in the fields of media, law, children, parenting, caring, serious childhood illness, medicine and nursing. It is argued that from an examination of interview based texts, parental resistance is an omnipresent but transitory occurrence that affects many of the interactions between the parents of seriously ill children and clinical staff. It is maintained that within these interactions, the seeds of this resistance are sown in both critical decision making situations and in everyday occurrences between doctors, nurses and parents within healthcare institutions. Contributing factors to parental resistance include the use of power games by staff, the language of medicine, forms of symbolic violence, the presence or absence of trust between parents and medical staff, the effects of medical habitus, and challenges to the parental role and identity. Overall, it is proposed in this thesis that parents who resist treatment for their seriously ill child are not exceptions to the normative patient-physician relationship. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1140 |
| Permanent link to this record |
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| Author |
Lowson, S. |
| Title |
Sacred memories: Creative art therapy for children in grief |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Children; Grief; Nursing; Terminal care; Psychology |
| Abstract |
This paper explores the creative opportunities children might have to attend to their emotions and feelings following the death of a parent, grandparent or close friend. It presents the position that often children are left out of the process of caring for an adult when they are terminally ill and that has long term psychological implications. It also suggests that this has antecedents for the white New Zealand culture that were noted historically. In this research the author describes a personal journey that has shaped her current work as a hospice practice manager. The writer explores literature in psychological aspects of removing children from the dying room, creative therapies and the importance of sacred memories for the living child. The need to create memory that will embrace the child as a cloak enfolds them in their crisis stimulated the writer to offer a text in the personal narrative form. This text is presented in this form to enable other clinicians to access their own memories as survivors of grief in their own families. It is suggested that by enabling children and family to explore the importance of relating in the palliative phase of a person's life journey, good memories are created for the survivors. |
| Call Number |
NRSNZNO @ research @ 1245 |
Serial |
1230 |
| Permanent link to this record |
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| Author |
Wilson, D.; McBride-Henry, K.; Huntington, A.D. |
| Title |
Family violence: Walking the tight rope between maternal alienation and child safety |
Type |
Journal Article |
| Year |
2005 |
Publication |
Contemporary Nurse |
Abbreviated Journal |
|
| Volume |
18 |
Issue |
1-2 |
Pages |
85-96 |
| Keywords |
Nursing; Domestic violence; Nurse-patient relations; Children |
| Abstract |
This paper discusses the complexity of family violence for nurses negotiating the 'tight rope' between the prime concern for the safety of children and further contributing to maternal alienation, within a New Zealand context. The premise that restoration of the mother-child relationship is paramount for the long-term wellbeing of both the children and the mother provides the basis for discussing implications for nursing practice. Evidence shows that when mothers are supported and have the necessary resources there is a reduction in the violence and abuse she and her children experience; this occurs even in situations where the mother is the primary abuser of her children. The family-centred care philosophy, which is widely accepted as the best approach to nursing care for children and their families, creates tension for nurses caring for children who are the victims of abuse as this care generally occurs away from the context of the family. |
| Call Number |
NRSNZNO @ research @ |
Serial |
698 |
| Permanent link to this record |
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| Author |
Dickinson, A.R.; Dignam, D. |
| Title |
Managing it: A mother's perspective of managing a pre-school child's acute asthma episode |
Type |
Journal Article |
| Year |
2002 |
Publication |
Journal of Child Health Care |
Abbreviated Journal |
|
| Volume |
6 |
Issue |
1 |
Pages |
7-18 |
| Keywords |
Asthma; Parents and caregivers; Children; Nurse-patient relations |
| Abstract |
This exploratory descriptive study informed by grounded theory examines the experience of mothers in managing their pre-school child's acute asthma attack at home. The study reveals that mothers perceive that they are responsible for the management of their pre-school child during an acute asthma episode, a process they described as 'managing it'. This process involves mother in 'working on treatment', 'making the call', 'watching' and 'calming', while the husband/partner, family, friends and health professionals are 'supporting treatment'. This study suggests that nurses and doctors need to move away from the current paternalistic view of health care delivery in acute settings and embrace the concepts of support and partnership in the care of the pre-school child with asthma and their family. |
| Call Number |
NRSNZNO @ research @ 728 |
Serial |
714 |
| Permanent link to this record |
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| Author |
Gasquoine, S.E. |
| Title |
Mothering a hospitalized child: It's the 'little things' that matter |
Type |
Journal Article |
| Year |
2005 |
Publication |
Journal of Child Health Care |
Abbreviated Journal |
coda, An Institutional Repository for the New Zealand ITP Sector |
| Volume |
9 |
Issue |
3 |
Pages |
186-195 |
| Keywords |
Nurse-family relations; Parents and caregivers; Paediatric nursing; Children |
| Abstract |
This article reports one aspect of a phenomenological study that described the lived experience of mothering a child hospitalised with acute illness or injury. The significance for mothers that nurses do the 'little things' emerged in considering the implications of this study's findings for nurses in practice. Seven mothers whose child had been hospitalised in the 12 months prior to the first interview agreed to share their stories. The resulting data were analysed and interpreted using van Manen's interpretation of phenomenology. This description of mothering in a context of crisis is useful in the potential contribution it makes to nurses' understanding of mothers' experience of the hospitalisation of their children. It supports the philosophy of family-centred care and highlights the ability of individual nurses to make a positive difference to a very stressful experience by acknowledging and doing 'little things', because it is the little things that matter to the mothers of children in hospital. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1053 |
| Permanent link to this record |
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| Author |
Woods, M. |
| Title |
Balancing rights and duties in 'life and death' decision making involving children: A role for nurses? |
Type |
Journal Article |
| Year |
2001 |
Publication |
Nursing Ethics |
Abbreviated Journal |
|
| Volume |
8 |
Issue |
5 |
Pages |
397-408 |
| Keywords |
Parents and caregivers; Children; Ethics; Clinical decision making; Nurse-family relations; Chronically ill |
| Abstract |
This article examines a growing number of cases in New Zealand in which parents and guardians are required to make life and death ethical decisions on behalf of their seriously ill child. Increasingly, nurses and other practitioners are expected to more closely inform, involve and support the rights of parents or guardians in such situations. Differing moral and ethical values between the medical team and parents or guardians can lead to difficult decision making situations. The article analyses the moral parameters, processes, outcomes and ethical responses that must be considered when life and death ethical decisions involving children are made. It concludes with a recommendation that nurses should be recognised as perhaps the most suitable of all health care personnel when careful mediation is needed to produce an acceptable moral outcome in difficult ethical situations. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1086 |
| Permanent link to this record |
