| Records |
| Author |
Chenery, K. |
| Title |
'Can mummy come too?' Rhetoric and realities of 'family-centred care' in one New Zealand hospital, 1960-1990 |
Type |
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| Year |
2001 |
Publication |
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Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Nurse-family relations; Policy; Hospitals; History of nursing; Paediatric nursing |
Abstract  |
This study explores the development of 'family-centred care' in New Zealand as part of an international movement advanced by 'experts' in the 1950s concerned with the psychological effects of mother-child separation. It positions the development of 'family-centred care' within the broader context of ideas and beliefs about mothering and children that emerged in New Zealand society between 1960 and 1980 as a response to these new concerns for children's emotional health. It examines New Zealand nursing, medical and related literature between 1960 and 1990 and considers both professional and public response to these concerns. The experiences of some mothers and nurses caring for children in one New Zealand hospital between 1960 and 1990 illustrate the significance of these responses in the context of one hospital children's ward and the subsequent implications for the practice of 'family-centred care'. This study demonstrates the difference between the professional rhetoric and the parental reality of 'family-centred care' in the context of one hospital children's ward between 1960 and 1990. The practice of 'family-centred care' placed mothers and nurses in contradictory positions within the ward environment. These contradictory positions were historically enduring, although they varied in their enactment. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1206 |
| Permanent link to this record |
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| Author |
Dickinson, A.R. |
| Title |
Within the web: The family/practitioner relationship in the context of chronic childhood illness |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
ScholarlyCommons@AUT |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Chronically ill; Children |
| Abstract |
This study explores the phenomenon of the relationships between practitioners and families who have a child with a chronic illness. Using a heremeneutic phenomenological method informed by the writings of Martin Heidegger [1889-1976] and Hans-Georg Gadamer [1900-2002], this study provides an understanding of the meaning of 'being in relationship' from the perspective of both families and practitioners. Study participants include ten family groups who have a child with a chronic illness and twelve practitioners from the disciplines of nursing, medicine, dietetics, physiotherapy and speech therapy who work with children with chronic illness. Narrative audio-taped interviewing was the means by which the participants told their stories about times that relationships worked well and when they did not. These stories uncover the every day realities of 'being in relationship' and provide another understanding of the relationship between family and practitioner.The findings of this thesis suggest that chronic childhood illness 'throws' families and practitioners together into a web of relationships that must work for the sake of the child. The relationship is primarily conducted between adults. Children are usually excluded. In order to understand and manage the child's illness, practitioners and families 'go around' and act 'in-between' relationships. While the quality of the relationship from the family perspective is not essential to the chronic illness journey, relationships are more successful when practitioners recognise the uniqueness of each family web. The nature of the relationship is often simple, yet it co-exists with complexity. This thesis proposes that a 'companion relationship' between practitioners and family may offer a more effective and satisfying way of working. It also challenges practitioners to consider the voice of children within health care relationships. |
| Call Number |
NRSNZNO @ research @ 1253 |
Serial |
1238 |
| Permanent link to this record |
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| Author |
McNamara, N. |
| Title |
The meaning of the experience for ICU nurses when a family member is critically ill: A hermeneutic phenomenologcial study |
Type |
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| Year |
2007 |
Publication |
|
Abbreviated Journal |
NZNO Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Intensive care nursing; Nurse-family relations |
| Abstract |
This study provides insight into the experience of being an ICU nurse and relative of a critically ill patient. Analysis of data from interviews of four ICU nurses who had experienced having a family member admitted to ICU brought up several themes. These included: a nurses' nightmare, knowing and not knowing, feeling torn, and gaining deeper insight and new meaning. Recommendations for organisational support for ICU nurse/relatives, and education for staff are made, based on the findings. |
| Call Number |
NRSNZNO @ research @ 1312 |
Serial |
1296 |
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| Author |
Marlow, S.A. |
| Title |
A voyage of grief and beauty: A phenomenological study of the experience of supporting a family member with an intellectual disability who is dying in a community setting |
Type |
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| Year |
2007 |
Publication |
|
Abbreviated Journal |
Research Archive@Victoria |
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Nurse-family relations; Terminal care; Parents and caregivers; People with disabilities |
| Abstract |
This thesis reports on a research project which explored the phenomenon of supporting a family member with an intellectual disability who is dying in a community setting. The research purpose was to enhance professional understanding of what it is like to encounter this lived experience. Literature back-grounding the phenomenon and philosophical and theoretical constructs embraced by the researcher are outlined. An explanation is given of the hermeneutic phenomenological methodology which was utilised. The main method of collecting research data was through conducting five open-ended interviews with participants who had supported a dying child or sibling. The participants' family members were aged between 3 and 52 years old at the time of their deaths. Their specific intellectual disabilities included Down syndrome, a metabolically induced disorder and a non-identified syndrome. The family members had died from a variety of terminal illnesses and in a range of community settings. Interpretive analysis was achieved through reflexive journaling and hermeneutic intuiting of interview transcripts and field notes. The research findings have been subjected to rhetorical consideration in the light of further literature and poetic texts. Research findings are expressed metaphorically as groups of boulders representing themes and sub-themes. Three major themes were revealed as having impacted on the river voyage shared by participants and their dying family members. These were Interlocked Companionship, Search for New Balance and Permeable Interaction. An assessment is offered of the strengths and weaknesses of the research project. The thesis concludes with recommendations for reflective practice, evidence based practice, service development and areas of future research. |
| Call Number |
NRSNZNO @ research @ 1144 |
Serial |
1129 |
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| Author |
McClunie-Trust, P. |
| Title |
Body boundaries and discursive practices in life threatening illness: Narratives of the self |
Type |
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| Year |
2000 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
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Issue |
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Pages |
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| Keywords |
Nurse-family relations; Nursing; Ethics |
| Abstract |
This thesis tells a story from within and between the boundaries of my professional work as a nurse and my private life as the wife of a patient with life threatening illness. The events related in the thesis are told using a technique I have called writing back to myself, where my own journals and stories of the experience of living with life threatening illness provide data for analysis. The reader is invited to participate in these representations and to consider the potential for the skilful practice of nursing which may be read in the stories, and the analysis I have developed from them. I have developed the theoretical and methodological positionings for the thesis from the work of Foucault (1975,1979,1982,1988), Deleuze (1988), Ellis (1995), Richardson (1998) and other writers who utilise genealogical or narrative approaches. The analysis of my own stories in the thesis explores the philosophical and contextual positionings of the nurse as a knowledge worker through genealogies of practice and the specific intellectual work of the nurse. Local and contextual epistemologies are considered as ways of theorising nursing practice through personal knowledge, which is surfaced through the critical analysis of contextual positionings and the process of writing as inquiry. |
| Call Number |
NRSNZNO @ research @ |
Serial |
791 |
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| Author |
Crawford, R. |
| Title |
Nutrition: Is there a need for nurses working with children and families to offer nutrition advice? |
Type |
Journal Article |
| Year |
2001 |
Publication |
Vision: A Journal of Nursing |
Abbreviated Journal |
|
| Volume |
7 |
Issue |
13 |
Pages |
10-15 |
| Keywords |
Paediatric nursing; Community health nursing; Nurse-family relations; Socioeconomic factors; Diet |
| Abstract |
Using nursing and associated literature, the relevance of nutrition in the care of children and families is highlighted in this article. The role of a nurse in providing nutrition advice and interventions is examined, in the context of social and economic pressures on the provision of a healthy diet. Relevant examples of the provision of such advice is provided, along with competencies required to achieve this in practice. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1276 |
| Permanent link to this record |
