| Records |
| Author |
McClunie-Trust, P |
| Title |
Negotiating Boundaries: The Nurse Family Member Caring for Her Own Relative in Palliative Care |
Type |
|
| Year |
2010 |
Publication |
|
Abbreviated Journal |
Victoria University Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; boundaries; patient-family relations |
| Abstract |
This research illuminates the challenges of living well within one's own family as a nurse caring for her own relative who is dying of a cancer-related illness. Developing a deeper awareness of the consequences of this caring work has been the central focus for inquiry in this research. Nursing requires epistemologies that encompass new ways of understanding how we live within our own families and communities and practice as nurses. The theoretical framework that guides this research interprets the French Philosopher Michel Foucault's (1926-1984) critical history of thought as an ethical project for nursing. It uses conceptual tools developed in his later writing and interviews to draw attention to how discursive knowledge and practices constitute subjectivity in relations of truth, power and the self's relation to the self. The first aspect of the analysis, landscapes of care examines the techniques of discourse as relations of power and knowledge that constitute nurse family members as subjects who have relationships with their own families and other health professionals. The second aspect analyses care of the self and others as self work undertaken to form the self as a particular kind of subject and achieve mastery over one's thoughts and actions.As an exploration of the complex and contradictory subjectivities of the nurse family member, this research illuminates the forms and limits of nursing practice knowledge. It shows how nursing is practised, and the identity of the nurse is created, through intellectual, political and relational work, undertaken on the self in relation to others, as modes of ethical engagement. |
Call Number  |
NZNO @ research @ |
Serial |
1350 |
| Permanent link to this record |
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| Author |
Norton, V. |
| Title |
Don't wait until we are struggling: what patients and family caregivers tell us about using a syringe driver |
Type |
Journal Article |
| Year |
2014 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
|
| Volume |
5 |
Issue |
1 |
Pages |
12-16 |
| Keywords |
Patients and family caregiver; Syringe driver; Palliative care; Symptom management |
| Abstract |
Undertakes a study to ascertain the experiences, perceptions and assumptions of patients and their family caregiver(s) about the use of a syringe driver in palliative care. Enrols hospice cancer patients who use syringe drivers to provide continuous delivery of drugs. Conducts interviews with 27 individuals: 12 patient/family caregiver pairs, and 3 caregivers. Uses thematic analysis to apply codes to data to reveal shared versus unique experiences. |
| Call Number |
NZNO @ research @ |
Serial |
1399 |
| Permanent link to this record |
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| |
| Author |
Smit, Charmaine |
| Title |
Making self-care a priority |
Type |
Journal Article |
| Year |
2017 |
Publication |
Whitireia Nursing and Health Journal |
Abbreviated Journal |
|
| Volume |
|
Issue |
24 |
Pages |
29-35 |
| Keywords |
Self-care; Compassion fatigue; Burn-out; Compassion; Palliative care |
| Abstract |
Highlights the importance of prioritising self-care for palliative care nurses whose prolonged exposure to work-related stress may result in burn-out. Recommends a self-care plan that addresses individual strengths and challenges, including physical, emotional, cognitive, relational and spiritual. Suggests the use of self-care strategies, such as the identification of professional and personal strengths, and the application of mindfulness and stress-reduction techniques to improve self-awareness. |
| Call Number |
NZNO @ research @ |
Serial |
1548 |
| Permanent link to this record |
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| Author |
Rodgers, Vivien; Marshall, Bridget; Hey, Frances; Blackwell, Anna; Lewer, Pip |
| Title |
Readiness for providing primary palliative care |
Type |
Journal Article |
| Year |
2017 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
|
| Volume |
33 |
Issue |
3 |
Pages |
P. 31-40 |
| Keywords |
Primary palliative care; Aged residential care; SEQUAL |
| Abstract |
Undertakes a pilot study by specialist Supportive Education and Quality (SEQUAL) palliative care team in 5 aged residential care (ARC) facilities in regional NZ. Conducts a clinical staff survey and facility desktop document review to determine readiness, need for and level of support required, to enhance primary palliative care for residents. Identifies lack of experience and palliative care education among clinical staff. |
| Call Number |
NZNO @ research @ |
Serial |
1589 |
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| Author |
McCormick, Glen; Thompson, Sean R |
| Title |
Provision of palliative and end-of-life care by paramedics in New Zealand communities: a review of international practice and the New Zealand context |
Type |
Journal Article |
| Year |
2019 |
Publication |
Whitireia Journal of Nursing, Health and Social Services |
Abbreviated Journal |
|
| Volume |
|
Issue |
26 |
Pages |
51-57 |
| Keywords |
End-of-life (EOL) care; Palliative care; Paramedic; Emergency services |
| Abstract |
Reviews the international literature on paramedic preparedness to provide palliative and EOL care in in the community, and applies it to the NZ context. Finds that paramedics would like improved education and better integration with traditional care providers, encompassing patients, family, whanau and carers. and that they stress the psychological, spiritual and cultural needs of their patients. |
| Call Number |
NZNO @ research @ |
Serial |
1634 |
| Permanent link to this record |
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| Author |
English, Wendy |
| Title |
The moments we meet : lived experiences of rapport for nurses, patients and families in palliative care |
Type |
Book Whole |
| Year |
2018 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
135 p. |
| Keywords |
Palliative care; Patients; Palliative care nursing; Connectedness; Person-centred care |
| Abstract |
Undertakes 12 in-depth interviews with nurses, patients and families about their experiences of rapport and inter-connectedness in the context of palliative care. By means of thematic analysis identifies major themes and associated emotions deriving from connectedness or disconnectedness. Links rapport and connection to holistic care. |
| Call Number |
NZNO @ research @ |
Serial |
1644 |
| Permanent link to this record |
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| Author |
McChesney, Ruth; McClunie-Trust, Patricia |
| Title |
Anticipatory prescribing in community palliative and end-of-life care: a realist review |
Type |
Journal Article |
| Year |
2021 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
|
| Volume |
12 |
Issue |
1 |
Pages |
32-43 |
| Keywords |
Anticipatory prescribing; End-of-life care; Palliative care; Interdisciplinary team; Community care |
| Abstract |
Argues that anticipatory prescribing and an interdisciplinary workforce could transform primary palliative care. Aims to identify the factors influencing such prescribing in palliative and end-of-life community care. Conducts a meta-synthesis of 7 primary research studies using a critical realist framework. Identifies expertise, teamwork and prioritisation as the factors influencing anitcipatory prescribing in end-of-life care. |
| Call Number |
NZNO @ research @ |
Serial |
1716 |
| Permanent link to this record |
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| |
| Author |
Henry, Amy |
| Title |
Staying at home: A qualitative descriptive study on Pacific palliative health |
Type |
Book Whole |
| Year |
2020 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
137 p. |
| Keywords |
Palliative care; Pacific health; Community palliative care; Talanoa research methodology; Surveys |
| Abstract |
Develops an understanding of the experiences of, and barriers for Pacific peoples in Canterbury utilising palliative care services. Considers the strengths and enablers for Pacific peoples accessing palliative care services and how such services, including home based palliative care, could better serve this community. Undertakes interviews using a semi-structured question guide, with nine family members who had provided palliative care within the last three years. |
| Call Number |
NZNO @ research @ |
Serial |
1762 |
| Permanent link to this record |
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| Author |
McDonald, Christine |
| Title |
Working collaboratively in hospice and palliative care: Sharing time; a grounded theory |
Type |
Book Whole |
| Year |
2018 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
230 p. |
| Keywords |
Palliative care; Hospice care; Collaboration |
| Abstract |
Addresses the concerns of health professionals working collaboratively in palliative care. Conducts 25 interviews wit 23 participants to arrive at a theory of sharing time to explain the social process of collaboration while individually managing and maintaining their own areas of concern. Explains the concept of health professionals making time in their work days for and with each other to find common ground. |
| Call Number |
NZNO @ research @ |
Serial |
1784 |
| Permanent link to this record |
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| Author |
Bray, Y.M. |
| Title |
A migrant family's experience of palliative nursing care |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Cultural safety; Asian peoples; Nurse-patient relations |
| Abstract |
The focus of this research was to explore the migrant family's experience in palliative care. In writing this thesis, the author notes that it became evident that cultural safety was a connection that warranted further study in relation to end-of-life nursing care as was illustrated by the intergenerational case study of this migrant family in New Zealand. The use of the case study method of qualitative research enabled the voice of the migrant to be heard and the story of the migrant family's experience to be showcased. The uniqueness of this family's palliative care experience was around the religious and cultural needs and migration as a process of transition from a previous society to a new one. Palliative care was defined by the family approach with strong community support and empowered by culturally safe and appropriate nursing practice. End-of-life illness is a time when cultural perspectives are challenged for patients and their families and religious and cultural practices take on a new priority, regardless of how they have lived life previously. As a migrant nurse living and working in the New Zealand context, the author identifies as an important factor, the nurse-patient interaction as an encounter between two cultural perspectives, the patient's and the nurse as bearer of her own culture. Acknowledging this factor is an important step in developing a culturally safe approach to practice, an approach that proved to be a major ingredient in planning and caring for this patient and his family in end-of-life illness. This study and thesis explores the underpinnings of culturally safe palliative nursing care and identified 'reflexive bracketing' as a useful practice in the process. |
| Call Number |
NRSNZNO @ research @ 846 |
Serial |
830 |
| Permanent link to this record |
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| |
| Author |
Campbell, K. |
| Title |
Experiences of rural women who have cared for their terminally ill partners |
Type |
Book Chapter |
| Year |
2008 |
Publication |
Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) |
Abbreviated Journal |
Ministry of Health publications page |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing |
| Abstract |
This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role. |
| Call Number |
NRSNZNO @ research @ 776 |
Serial |
760 |
| Permanent link to this record |
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| Author |
Richardson, C.A. |
| Title |
Ever decreasing circles: Non-curative terminal illness, empowerment and decision making: Lessons for nursing practice |
Type |
|
| Year |
2005 |
Publication |
|
Abbreviated Journal |
University of Otago Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nursing; Palliative care; Terminal care; Psychology |
| Abstract |
|
| Call Number |
NRSNZNO @ research @ 683 |
Serial |
669 |
| Permanent link to this record |
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| Author |
Voice, D.M. |
| Title |
Everyday district nurses' experiences revealed through distillation: Palliative care in the community |
Type |
|
| Year |
2006 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
District nursing; Palliative care; Community health nursing; Nursing |
| Abstract |
This modified action research inquiry focused on the everyday, palliative care practice experiences of a group of district nurses. The intent was to develop an understanding of common issues of concern for this group of district nurses when providing palliative home care in a specific community context and to implement practical, achievable strategies in response to these local issues. Five district nurses identified four broad areas for action through four praxis group meetings and comprising one full cycle. These four areas have been named as methods of enhancing support for people and families, possibilities for creatively managing workloads, mechanisms to enrich working partnership with other palliative care providers and possible vehicles for supporting nurses' self care. Implementation of action from this action research project focused on enhancing care and outcomes for people and family served by this group of district nurses in their local community. This study illuminates everyday essences of the district nurse role and the elements articulated by this group in supporting their practice in one New Zealand community. This study also reveals some of the tensions and messiness when employing an action research methodology with nurses in the workplace. The author notes that this research focused on a little known area (palliative care delivered by district nurses in New Zealand) in a local community (a culturally vibrant and ethnically diverse yet with poor health and socioeconomic statistics). She goes on to say that it has resonance with other nurses, particularly those working in community settings who may experience similar issues and concerns. This research also offers important insights for nurses working in any practice setting. |
| Call Number |
NRSNZNO @ research @ 520 |
Serial |
506 |
| Permanent link to this record |
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| Author |
Hall, K.A. |
| Title |
Soothing sounds: An investigation into the value of music in palliative care |
Type |
|
| Year |
2003 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Nursing; Qualiltative research; Alternative therapies |
| Abstract |
This qualitative study focuses on van Manen's theory of the 'lived experience' in relation to two families and asks the first thesis question. What is the value of music in the care of someone who is dying? Over the course of their loved one's illness these families provided music in the patients home as part of their care. The study also captures the experiences of two nurses who work in the palliative setting, and their use of music in providing holistic care to their patients. Their experiences relate to the second question. How can nurses be assisted in introducing music into their planned care of patients? The results demonstrate the effectiveness of using taped music for someone who is dying, and the reduction in symptoms, such as anxiety, and pain. It also highlights the importance of the individual's choice, and the special moments that can be achieved for both patient and families when music is used in a caring, supportive environment. This encourages communication, especially in the sharing of emotions. This study may be the first qualitative study in New Zealand, that addresses the value of music in palliative care, therefore there is a need for continued research into this therapy as a treatment modality as part of planned care in palliative nursing. |
| Call Number |
NRSNZNO @ research @ 1216 |
Serial |
1201 |
| Permanent link to this record |
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| |
| Author |
Nolan, M.; Featherston, J.; Nolan, J. |
| Title |
Palliative care: Palliative care philosophy in care homes: Lessons from New Zealand |
Type |
Journal Article |
| Year |
2003 |
Publication |
British Journal of Nursing |
Abbreviated Journal |
|
| Volume |
12 |
Issue |
16 |
Pages |
974-979 |
| Keywords |
Palliative care; Attitude of health personnel |
| Abstract |
Drawing on data from a large convenience sample of caregivers in New Zealand, this article argues for a reappraisal of the way in which care homes view death and dying and advocates the more widespread adoption of a palliative care philosophy. Increasing numbers of people are dying in care homes yet little is known about the nature and quality of their deaths. The limited research available suggests that there is a need to promote a philosophy of palliative care that is not confined to the terminal phase of life. However, adopting such an approach appears to be inhibited by a lack of understanding, education and training, as well as continuing reluctance to discuss issues of death and dying in an open and honest way. |
| Call Number |
NRSNZNO @ research @ 1081 |
Serial |
1066 |
| Permanent link to this record |
