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Author Deo, Lalesh
Title Parental needs and nursing response following SUFE Surgery; An interpretive descriptive study Type Book Whole
Year 2021 Publication Abbreviated Journal
Volume Issue Pages 141 p.
Keywords Slipped Upper Femoral Epiphysis (SUFE); Parents and Caregivers; Child health; Maori children; Pacific children; Paediatric nurses
Abstract Examines the experiences of parents and nurses in caring for a child following invasive Slipped Upper Femoral Epiphysis (SUFE) repair. Conducts semi-structured interviews with parents of five children, predominantly Māori or Pacific, who underwent SUFE repair, and five paediatric nurses caring for the children and their families in the hospital ward. Offers two perspectives of the journey for these parents following such an injury, from the child's hospitalisation to caring for these children once they are home. Presents and contrasts these perspectives, revealing insights into the parents' ongoing need for support, information and planning for care, and nurses' efforts to meet these needs. Presents implications for nursing practice.
Call Number (down) NZNO @ research @ Serial 1741
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Author Crawford, R.
Title An exploration of nurses' understanding of parenting in hospital Type
Year 2000 Publication Abbreviated Journal Massey University Library
Volume Issue Pages
Keywords Nurse-family relations; Children; Hospitals; Parents and caregivers
Abstract
Call Number (down) NRSNZNO @ research @ 812 Serial 796
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Author Campbell, K.
Title Experiences of rural women who have cared for their terminally ill partners Type Book Chapter
Year 2008 Publication Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) Abbreviated Journal Ministry of Health publications page
Volume Issue Pages
Keywords Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing
Abstract This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role.
Call Number (down) NRSNZNO @ research @ 776 Serial 760
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Author Dickinson, A.R.; Dignam, D.
Title Managing it: A mother's perspective of managing a pre-school child's acute asthma episode Type Journal Article
Year 2002 Publication Journal of Child Health Care Abbreviated Journal
Volume 6 Issue 1 Pages 7-18
Keywords Asthma; Parents and caregivers; Children; Nurse-patient relations
Abstract This exploratory descriptive study informed by grounded theory examines the experience of mothers in managing their pre-school child's acute asthma attack at home. The study reveals that mothers perceive that they are responsible for the management of their pre-school child during an acute asthma episode, a process they described as 'managing it'. This process involves mother in 'working on treatment', 'making the call', 'watching' and 'calming', while the husband/partner, family, friends and health professionals are 'supporting treatment'. This study suggests that nurses and doctors need to move away from the current paternalistic view of health care delivery in acute settings and embrace the concepts of support and partnership in the care of the pre-school child with asthma and their family.
Call Number (down) NRSNZNO @ research @ 728 Serial 714
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Author Bolitho, S.; Huntington, A.D.
Title Experiences of Maori families accessing health care for their unwell children: A pilot study Type Journal Article
Year 2006 Publication Nursing Praxis in New Zealand Abbreviated Journal
Volume 22 Issue 1 Pages 23-32
Keywords Maori; Qualiltative research; Access; Children; Parents and caregivers
Abstract The aim of this study was to explore with a small number of Maori families their experiences of accessing health care when their children were unwell with a respiratory condition. A qualitative research methodology was used in the study. Participating families were among those experiencing an admission to a children's ward between July and December 2003. Four families were interviewed. They discussed in depth their experience of accessing health care for their unwell children. Data were analysed using thematic analysis, and three common themes were evident: family resources, choice of health service provider and parents' feelings of vulnerability. The findings highlight that while socio-economic status plays a large part in determining the ease with which families can access the needed health care, there are other barriers within the health system which also pose difficulties for Maori.
Call Number (down) NRSNZNO @ research @ 535 Serial 521
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Author McKelvie, R.
Title Partnership in paediatric nursing: A descriptive exploration of the concept and its practice Type
Year 2001 Publication Abbreviated Journal
Volume Issue Pages
Keywords Paediatric nursing; Parents and caregivers; Children; Relationships
Abstract A 50 point research project presented in partial fulfilment of the requirements for the degree of Master of Nursing at Massey University.
Call Number (down) NRSNZNO @ research @ 484 Serial 471
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Author Trenberth, D.
Title New Zealand families' beliefs about what constitutes successful management of unsupervised childcare Type
Year 2008 Publication Abbreviated Journal ResearchArchive@Victoria
Volume Issue Pages
Keywords Children; Parents and caregivers
Abstract This study explored what some New Zealand families believe constitutes the successful management of unsupervised childcare. It was designed to increase social understanding and practitioner knowledge of the issue by exploring families' beliefs, practices and perspectives. The researcher was concerned with the professional role nurses may play with this group of children. A qualitative descriptive approach was used to obtain a straight description of successful unsupervised childcare, using the everyday language of the participating families. Data was collected in semi structured interviews with five family groups, and subjected to content and thematic analysis. Findings suggest unsupervised childcare is both choice and solution, though parents are fearful of the legal and social consequences of using it. Context of the care is important, with the child's preference, community context and availability of adults through distal supervision critical components of its success. Trust between parent and child, the use of rules and boundaries to regulate child behaviour, the teaching of skills and strategies to build child competency, and parental support of children while unsupervised are identified by parents as factors linked to success. Parents identify increasing child independence and self responsibility as positive outcomes from the successful use of unsupervised childcare. This study has helped to identify positive factors resulting in good outcomes from which successful interventions could be developed, provides information that will be of particular interest to practitioners and policy makers, and provides a platform to launch larger studies into the issue of unsupervised children.
Call Number (down) NRSNZNO @ research @ 1252 Serial 1237
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Author Murphy, S.E.E.
Title Through mothers' eyes: The lived experience of caring for a child who has undergone and recovered from a liver transplantation Type
Year 2008 Publication Abbreviated Journal ResearchArchive@Victoria
Volume Issue Pages
Keywords Parents and caregivers; Paediatric nursing; Children; Surgery
Abstract Mothers, whose children had undergone a liver transplant more than one year ago at time of interview and whose children were outpatients of Starship Children's Hospital, were invited to participate in this research. A Heideggerian hermeneutic phenomenological approach, informed by the work of van Manen (1990) was used. Three mothers of children who had received a liver transplant were interviewed to reveal the meanings of the phenomenon – what is the meaning of lived experience of mothers in caring for their child who has undergone and recovered following liver transplantation? Little previous study regarding mothers' lived experience of caring for their child, who had recovered from a liver transplant, was found in the literature. The emerging themes were punctuated with stress being a consistent feature. Utilising Ruddick's (1983) concepts of maternal thinking, the emerging themes were merged within the three interests governing maternal practice; preservation, growth and acceptability. The absolute capacity for attentive love draws the experience together. An essential theme identified out of the analysis was the concept of survival relating to the unique features of liver transplantation and the consequences of liver rejection and failure. The findings contribute to the understanding of the phenomenon, emphasising the need for good support systems for families of children who have undergone transplantation; assistance in the establishment of maternal coping strategies and regular feedback on the children's progress acknowledging the role and care provided by mothers.
Call Number (down) NRSNZNO @ research @ 1242 Serial 1227
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Author Marlow, S.A.
Title A voyage of grief and beauty: A phenomenological study of the experience of supporting a family member with an intellectual disability who is dying in a community setting Type
Year 2007 Publication Abbreviated Journal Research Archive@Victoria
Volume Issue Pages
Keywords Nurse-family relations; Terminal care; Parents and caregivers; People with disabilities
Abstract This thesis reports on a research project which explored the phenomenon of supporting a family member with an intellectual disability who is dying in a community setting. The research purpose was to enhance professional understanding of what it is like to encounter this lived experience. Literature back-grounding the phenomenon and philosophical and theoretical constructs embraced by the researcher are outlined. An explanation is given of the hermeneutic phenomenological methodology which was utilised. The main method of collecting research data was through conducting five open-ended interviews with participants who had supported a dying child or sibling. The participants' family members were aged between 3 and 52 years old at the time of their deaths. Their specific intellectual disabilities included Down syndrome, a metabolically induced disorder and a non-identified syndrome. The family members had died from a variety of terminal illnesses and in a range of community settings. Interpretive analysis was achieved through reflexive journaling and hermeneutic intuiting of interview transcripts and field notes. The research findings have been subjected to rhetorical consideration in the light of further literature and poetic texts. Research findings are expressed metaphorically as groups of boulders representing themes and sub-themes. Three major themes were revealed as having impacted on the river voyage shared by participants and their dying family members. These were Interlocked Companionship, Search for New Balance and Permeable Interaction. An assessment is offered of the strengths and weaknesses of the research project. The thesis concludes with recommendations for reflective practice, evidence based practice, service development and areas of future research.
Call Number (down) NRSNZNO @ research @ 1144 Serial 1129
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Author Chenery, K.
Title Family-centred care: Understanding our past Type Miscellaneous
Year 2004 Publication Nursing Praxis in New Zealand Abbreviated Journal
Volume 20 Issue 3 Pages 4-12
Keywords History of nursing; Nurse-family relations; Paediatric nursing; Parents and caregivers
Abstract Oral history accounts of the care of the hospitalised child in the context of family are used to argue that current practice paradoxes in family-centred care are historically ingrained. The article looks at the post-war period, the intervening years, and current practice, centred on the changing concept of motherhood throughout that time. The conflict between clinical expediency versus family and child needs is explored.
Call Number (down) NRSNZNO @ research @ 1113 Serial 1098
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Author Tritschler, E.; Yarwood, J.
Title Relating to families through their seasons of life: An indigenous practice model Type Journal Article
Year 2007 Publication Kai Tiaki: Nursing New Zealand Abbreviated Journal
Volume 13 Issue 5 Pages 18-3
Keywords Parents and caregivers; Nursing models; Nurse-family relations; Communication
Abstract In this article the authors introduce an alternative way that nurses can be with families, using a relational process that can enhance nurses' responses when working with those transitioning to parenthood. Seasons of Life, a framework adapted from the Maori health model He Korowai Oranga, emerged from practice to offer a compassionate and encouraging stance, while at the same time respecting each family's realities and wishes. The model allows the exploration of the transition to parenthood within a wellness model, and takes a strengths-based approach to emotional distress. This approach provides a sense of “normality”, rather than of pathology, for the emotions experienced by new parents. The specific issues men may face are discussed, where despite recent culture change that allows men a more nurturing parental role, there is still no clear understanding of how men articulate their sense of pleasure or distress at this time. Practitioners are encouraged to examine their own assumptions, values and beliefs, and utilise tools such as reflective listening, respect, insight and understanding. The most significant aspect of relationship between nurse and parents is not the outcome, but how nurses engage with families. Examples from practice will demonstrate some of the differing ways this relational process framework has been effective.
Call Number (down) NRSNZNO @ research @ 1007 Serial 991
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Author Gage, J.; Everrett, K.D.; Bullock, L.
Title Integrative review of parenting in nursing research Type Journal Article
Year 2006 Publication Journal of Nursing Scholarship Abbreviated Journal
Volume 38 Issue 1 Pages 56-62
Keywords Parents and caregivers; Nursing research; Evaluation
Abstract The authors synthesise and critically analyse parenting research in nursing. They focused on studies published between 1993 and 2004 by nurse researchers in peer-reviewed journals. Data were organised and analysed with a sample of 17 nursing research studies from core nursing journals. The majority of parenting research has been focused on mothers, primarily about parenting children with physical or developmental disabilities. Research about fathers as parents is sparse. Parenting across cultures, parenting in the context of family, and theoretical frameworks for parenting research are not well developed. The authors conclude that the scope of nursing research on parenting is limited.
Call Number (down) NRSNZNO @ research @ Serial 709
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Author Blackie, S.A.H.
Title Women, work, study and health: The experience of nurses engaged in paid work and further education Type
Year 2001 Publication Abbreviated Journal Massey University Library
Volume Issue Pages
Keywords Parents and caregivers; Nursing; Education
Abstract
Call Number (down) NRSNZNO @ research @ Serial 789
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Author Buxton, J.
Title Factors which may influence parental decisions about childhood vaccinations Type
Year 2007 Publication Abbreviated Journal Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz
Volume Issue Pages
Keywords Immunisation; Practice nurses; Children; Parents and caregivers
Abstract Practice nurses are primarily responsible for the administration of vaccinations in New Zealand, although many other health professionals contribute to the success of the National Immunisation Schedule by providing vaccination information and advice to parents. Vaccination uptake remains relatively low, indicating many parents choose not to vaccinate their children. A literature review was undertaken to gain an understanding of factors which may influence parents when they are making decisions about childhood vaccinations. Four key themes were identified within the literature: Perceived risk; Vaccine safety and efficacy; Child characteristics; and the Influence of health professionals/supporting vaccination structures. Increased knowledge and awareness about influential factors creates opportunities for health professionals and policy makers to develop strategies to increase vaccination uptake. Implications and recommendations are made for practice, with particular emphasis on the role of the primary healthcare nurse.
Call Number (down) NRSNZNO @ research @ Serial 919
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Author Dobson, J.
Title Nurses' experiences of parental informed consent in the neonatal intensive care unit Type
Year 2004 Publication Abbreviated Journal Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz
Volume Issue Pages
Keywords Neonatal nursing; Parents and caregivers
Abstract The Guthrie Test has become the standard screening test for early detection of congenital metabolic disorders for newborn babies in New Zealand and is an accepted part of neonatal care. In neonatal care, decisions are made on behalf of babies usually by their parents and, for the Guthrie Test there is a requirement that health professionals obtain informed consent. This qualitative research utilised focus group methodology to discover what neonatal nurses in clinical practice consider when obtaining informed consent from parents for newborn screening, the Guthrie Test. The convenience sample consisted of seven registered nurses who volunteered to participate in the study. They all practice in the Neonatal Intensive Care Unit at Dunedin Public Hospital that provides Level 3 intensive care to neonates in the Otago/Southland regions. There are proven benefits of the current newborn screening programme and in the experience of this focus group not many parents choose to refuse. These neonatal nurses identified the rights of parents to have that choice and to make an informed decision. The findings from this research indicate the importance neonatal nurses place on patients' rights and the information provided to ensure that their rights are respected. However, the results indicated that there is a need for clarification of the purpose and process of informed consent for the Guthrie Test in the Neonatal Intensive Care Unit. Therefore providing sufficient, relevant information at an appropriate time and manner is considered necessary. The findings will be used to inform discussion related to the provision of best practice.
Call Number (down) NRSNZNO @ research @ Serial 921
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