| Records |
| Author |
Marlow, S.A. |
| Title |
A voyage of grief and beauty: A phenomenological study of the experience of supporting a family member with an intellectual disability who is dying in a community setting |
Type |
|
| Year |
2007 |
Publication |
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Abbreviated Journal |
Research Archive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Terminal care; Parents and caregivers; People with disabilities |
| Abstract |
This thesis reports on a research project which explored the phenomenon of supporting a family member with an intellectual disability who is dying in a community setting. The research purpose was to enhance professional understanding of what it is like to encounter this lived experience. Literature back-grounding the phenomenon and philosophical and theoretical constructs embraced by the researcher are outlined. An explanation is given of the hermeneutic phenomenological methodology which was utilised. The main method of collecting research data was through conducting five open-ended interviews with participants who had supported a dying child or sibling. The participants' family members were aged between 3 and 52 years old at the time of their deaths. Their specific intellectual disabilities included Down syndrome, a metabolically induced disorder and a non-identified syndrome. The family members had died from a variety of terminal illnesses and in a range of community settings. Interpretive analysis was achieved through reflexive journaling and hermeneutic intuiting of interview transcripts and field notes. The research findings have been subjected to rhetorical consideration in the light of further literature and poetic texts. Research findings are expressed metaphorically as groups of boulders representing themes and sub-themes. Three major themes were revealed as having impacted on the river voyage shared by participants and their dying family members. These were Interlocked Companionship, Search for New Balance and Permeable Interaction. An assessment is offered of the strengths and weaknesses of the research project. The thesis concludes with recommendations for reflective practice, evidence based practice, service development and areas of future research. |
Call Number  |
NRSNZNO @ research @ 1144 |
Serial |
1129 |
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| Author |
Murphy, S.E.E. |
| Title |
Through mothers' eyes: The lived experience of caring for a child who has undergone and recovered from a liver transplantation |
Type |
|
| Year |
2008 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Parents and caregivers; Paediatric nursing; Children; Surgery |
| Abstract |
Mothers, whose children had undergone a liver transplant more than one year ago at time of interview and whose children were outpatients of Starship Children's Hospital, were invited to participate in this research. A Heideggerian hermeneutic phenomenological approach, informed by the work of van Manen (1990) was used. Three mothers of children who had received a liver transplant were interviewed to reveal the meanings of the phenomenon – what is the meaning of lived experience of mothers in caring for their child who has undergone and recovered following liver transplantation? Little previous study regarding mothers' lived experience of caring for their child, who had recovered from a liver transplant, was found in the literature. The emerging themes were punctuated with stress being a consistent feature. Utilising Ruddick's (1983) concepts of maternal thinking, the emerging themes were merged within the three interests governing maternal practice; preservation, growth and acceptability. The absolute capacity for attentive love draws the experience together. An essential theme identified out of the analysis was the concept of survival relating to the unique features of liver transplantation and the consequences of liver rejection and failure. The findings contribute to the understanding of the phenomenon, emphasising the need for good support systems for families of children who have undergone transplantation; assistance in the establishment of maternal coping strategies and regular feedback on the children's progress acknowledging the role and care provided by mothers. |
| Call Number |
NRSNZNO @ research @ 1242 |
Serial |
1227 |
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| Author |
Trenberth, D. |
| Title |
New Zealand families' beliefs about what constitutes successful management of unsupervised childcare |
Type |
|
| Year |
2008 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Children; Parents and caregivers |
| Abstract |
This study explored what some New Zealand families believe constitutes the successful management of unsupervised childcare. It was designed to increase social understanding and practitioner knowledge of the issue by exploring families' beliefs, practices and perspectives. The researcher was concerned with the professional role nurses may play with this group of children. A qualitative descriptive approach was used to obtain a straight description of successful unsupervised childcare, using the everyday language of the participating families. Data was collected in semi structured interviews with five family groups, and subjected to content and thematic analysis. Findings suggest unsupervised childcare is both choice and solution, though parents are fearful of the legal and social consequences of using it. Context of the care is important, with the child's preference, community context and availability of adults through distal supervision critical components of its success. Trust between parent and child, the use of rules and boundaries to regulate child behaviour, the teaching of skills and strategies to build child competency, and parental support of children while unsupervised are identified by parents as factors linked to success. Parents identify increasing child independence and self responsibility as positive outcomes from the successful use of unsupervised childcare. This study has helped to identify positive factors resulting in good outcomes from which successful interventions could be developed, provides information that will be of particular interest to practitioners and policy makers, and provides a platform to launch larger studies into the issue of unsupervised children. |
| Call Number |
NRSNZNO @ research @ 1252 |
Serial |
1237 |
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| Author |
McKelvie, R. |
| Title |
Partnership in paediatric nursing: A descriptive exploration of the concept and its practice |
Type |
|
| Year |
2001 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Paediatric nursing; Parents and caregivers; Children; Relationships |
| Abstract |
A 50 point research project presented in partial fulfilment of the requirements for the degree of Master of Nursing at Massey University. |
| Call Number |
NRSNZNO @ research @ 484 |
Serial |
471 |
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| Author |
Bolitho, S.; Huntington, A.D. |
| Title |
Experiences of Maori families accessing health care for their unwell children: A pilot study |
Type |
Journal Article |
| Year |
2006 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
|
| Volume |
22 |
Issue |
1 |
Pages |
23-32 |
| Keywords |
Maori; Qualiltative research; Access; Children; Parents and caregivers |
| Abstract |
The aim of this study was to explore with a small number of Maori families their experiences of accessing health care when their children were unwell with a respiratory condition. A qualitative research methodology was used in the study. Participating families were among those experiencing an admission to a children's ward between July and December 2003. Four families were interviewed. They discussed in depth their experience of accessing health care for their unwell children. Data were analysed using thematic analysis, and three common themes were evident: family resources, choice of health service provider and parents' feelings of vulnerability. The findings highlight that while socio-economic status plays a large part in determining the ease with which families can access the needed health care, there are other barriers within the health system which also pose difficulties for Maori. |
| Call Number |
NRSNZNO @ research @ 535 |
Serial |
521 |
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| Author |
Dickinson, A.R.; Dignam, D. |
| Title |
Managing it: A mother's perspective of managing a pre-school child's acute asthma episode |
Type |
Journal Article |
| Year |
2002 |
Publication |
Journal of Child Health Care |
Abbreviated Journal |
|
| Volume |
6 |
Issue |
1 |
Pages |
7-18 |
| Keywords |
Asthma; Parents and caregivers; Children; Nurse-patient relations |
| Abstract |
This exploratory descriptive study informed by grounded theory examines the experience of mothers in managing their pre-school child's acute asthma attack at home. The study reveals that mothers perceive that they are responsible for the management of their pre-school child during an acute asthma episode, a process they described as 'managing it'. This process involves mother in 'working on treatment', 'making the call', 'watching' and 'calming', while the husband/partner, family, friends and health professionals are 'supporting treatment'. This study suggests that nurses and doctors need to move away from the current paternalistic view of health care delivery in acute settings and embrace the concepts of support and partnership in the care of the pre-school child with asthma and their family. |
| Call Number |
NRSNZNO @ research @ 728 |
Serial |
714 |
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| Author |
Campbell, K. |
| Title |
Experiences of rural women who have cared for their terminally ill partners |
Type |
Book Chapter |
| Year |
2008 |
Publication |
Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) |
Abbreviated Journal |
Ministry of Health publications page |
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing |
| Abstract |
This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role. |
| Call Number |
NRSNZNO @ research @ 776 |
Serial |
760 |
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| Author |
Crawford, R. |
| Title |
An exploration of nurses' understanding of parenting in hospital |
Type |
|
| Year |
2000 |
Publication |
|
Abbreviated Journal |
Massey University Library |
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Nurse-family relations; Children; Hospitals; Parents and caregivers |
| Abstract |
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| Call Number |
NRSNZNO @ research @ 812 |
Serial |
796 |
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| Author |
Deo, Lalesh |
| Title |
Parental needs and nursing response following SUFE Surgery; An interpretive descriptive study |
Type |
Book Whole |
| Year |
2021 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
141 p. |
| Keywords |
Slipped Upper Femoral Epiphysis (SUFE); Parents and Caregivers; Child health; Maori children; Pacific children; Paediatric nurses |
| Abstract |
Examines the experiences of parents and nurses in caring for a child following invasive Slipped Upper Femoral Epiphysis (SUFE) repair. Conducts semi-structured interviews with parents of five children, predominantly Māori or Pacific, who underwent SUFE repair, and five paediatric nurses caring for the children and their families in the hospital ward. Offers two perspectives of the journey for these parents following such an injury, from the child's hospitalisation to caring for these children once they are home. Presents and contrasts these perspectives, revealing insights into the parents' ongoing need for support, information and planning for care, and nurses' efforts to meet these needs. Presents implications for nursing practice. |
| Call Number |
NZNO @ research @ |
Serial |
1741 |
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