| Records |
| Author |
Dickinson, A.R. |
Title  |
Within the web: The family/practitioner relationship in the context of chronic childhood illness |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
ScholarlyCommons@AUT |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Chronically ill; Children |
| Abstract |
This study explores the phenomenon of the relationships between practitioners and families who have a child with a chronic illness. Using a heremeneutic phenomenological method informed by the writings of Martin Heidegger [1889-1976] and Hans-Georg Gadamer [1900-2002], this study provides an understanding of the meaning of 'being in relationship' from the perspective of both families and practitioners. Study participants include ten family groups who have a child with a chronic illness and twelve practitioners from the disciplines of nursing, medicine, dietetics, physiotherapy and speech therapy who work with children with chronic illness. Narrative audio-taped interviewing was the means by which the participants told their stories about times that relationships worked well and when they did not. These stories uncover the every day realities of 'being in relationship' and provide another understanding of the relationship between family and practitioner.The findings of this thesis suggest that chronic childhood illness 'throws' families and practitioners together into a web of relationships that must work for the sake of the child. The relationship is primarily conducted between adults. Children are usually excluded. In order to understand and manage the child's illness, practitioners and families 'go around' and act 'in-between' relationships. While the quality of the relationship from the family perspective is not essential to the chronic illness journey, relationships are more successful when practitioners recognise the uniqueness of each family web. The nature of the relationship is often simple, yet it co-exists with complexity. This thesis proposes that a 'companion relationship' between practitioners and family may offer a more effective and satisfying way of working. It also challenges practitioners to consider the voice of children within health care relationships. |
| Call Number |
NRSNZNO @ research @ 1253 |
Serial |
1238 |
| Permanent link to this record |
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| Author |
Murphy, S.E.E. |
| Title |
Through mothers' eyes: The lived experience of caring for a child who has undergone and recovered from a liver transplantation |
Type |
|
| Year |
2008 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Parents and caregivers; Paediatric nursing; Children; Surgery |
| Abstract |
Mothers, whose children had undergone a liver transplant more than one year ago at time of interview and whose children were outpatients of Starship Children's Hospital, were invited to participate in this research. A Heideggerian hermeneutic phenomenological approach, informed by the work of van Manen (1990) was used. Three mothers of children who had received a liver transplant were interviewed to reveal the meanings of the phenomenon – what is the meaning of lived experience of mothers in caring for their child who has undergone and recovered following liver transplantation? Little previous study regarding mothers' lived experience of caring for their child, who had recovered from a liver transplant, was found in the literature. The emerging themes were punctuated with stress being a consistent feature. Utilising Ruddick's (1983) concepts of maternal thinking, the emerging themes were merged within the three interests governing maternal practice; preservation, growth and acceptability. The absolute capacity for attentive love draws the experience together. An essential theme identified out of the analysis was the concept of survival relating to the unique features of liver transplantation and the consequences of liver rejection and failure. The findings contribute to the understanding of the phenomenon, emphasising the need for good support systems for families of children who have undergone transplantation; assistance in the establishment of maternal coping strategies and regular feedback on the children's progress acknowledging the role and care provided by mothers. |
| Call Number |
NRSNZNO @ research @ 1242 |
Serial |
1227 |
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| Author |
Wagener, Sally |
| Title |
The nursing management of the acutely ill child in communities without readily available specialist paediatric services |
Type |
Report |
| Year |
1994 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
22 p. |
| Keywords |
Chronically ill children; Pediatric nursing -- Australia; Child health services -- Australia; Reports |
| Abstract |
Observes how acutely ill children in remote areas of Australia are managed in the absence of specialist paediatric nursing services. Visits remote nursing stations, rural hospitals, and the Royal Flying Doctor Service. Part of the Margaret May Blackwell Scholarship Reports series. |
| Call Number |
NZNO @ research @ |
Serial |
1415 |
| Permanent link to this record |
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| Author |
Mockford, Andrea |
| Title |
The exploration of systems and technologies to enhance the healthcare of children under five |
Type |
Report |
| Year |
2009 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
130p |
| Keywords |
Child health services; Children's hospitals; Family nursing; Reports |
| Abstract |
The well known premise that 'healthy children grow into healthy adults' should reinforce the need for us to engage with parents and caregivers to ensure that we support them with meeting their child's health care needs. This scholarship enabled the author to see what the UK, Sweden, the US, and Canada were doing to strengthen and support children under five and their families across the continuum of care. Part of the Margaret May Blackwell Scholarship Reports series. |
| Call Number |
NZNO @ research @ |
Serial |
1422 |
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| Author |
Sampson, C. |
| Title |
The allergy nurse specialist: A proposed nurse-led model of care for children with severe food allergies |
Type |
|
| Year |
2006 |
Publication |
|
Abbreviated Journal |
Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Children; Nursing specialties; Child health services; Food allergies |
| Abstract |
The prevalence of allergic disease has increased significantly in western countries over the last decade. However, the author points to the availability of specialist allergy services in New Zealand being limited to the large cities, resulting in a lack of, or fragmentation of, the allergy-related services in smaller regions. As a public health nurse in Otago working with a rising number of families with severely food allergic children, the author had become aware of the challenges many parents face in accessing accurate information about their child's allergy and the negative impact this has had on them and their child. The purpose of this dissertation is to explore how an Allergy Nurse Specialist (ANS) led service could improve the experiences and health outcomes of the families and children with severe food allergies living in Otago. A critical analysis of the literature on allergy nursing, advanced nursing roles, and related food allergy issues was conducted and applied to the Otago region. Drawing on the 'Nurse with a Special Interest in Allergy' model of nurse-led allergy care outlined by Cross (2005) and the existing Otago District Health Board's (2004) clinical nurse specialist role, the author proposes that an ANS-led model of care, incorporating advanced nursing practice, primary care access and multidisciplinary collaboration could complement the existing allergy related services in Otago. The focus of the ANS's care will be on facilitating timely access to accurate assessment and advice for families regarding the management of their child's food allergies. |
| Call Number |
NRSNZNO @ research @ |
Serial |
730 |
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| Author |
Wilson, H.V. |
| Title |
Surveillance or support: Divergent discourses in Plunket nursing practice |
Type |
|
| Year |
2000 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Public health; Children; Community health nursing; Plunket |
| Abstract |
Plunket nurses are New Zealand child health nurses who work in the community with the families of new babies and preschool children. Their work is called child health surveillance and this is considered to involve routine and unproblematic practices which are generally carried out in homes and clinics in the context of a relationship with the child's mother (Ministry of Health 1996; Royal New Zealand Plunket Society 1997). However, evidence in the literature that surveillance can have implications for power relations throws doubts on official claims that the relationship between the mother and nurse operates as a partnership (Trout and Polaschek 1996). The purpose of this thesis was to explore the way in which surveillance is constituted within the discourses of Plunket nurses and to examine these discourses for any implications of unequal power relations. Foucauldian discourse theory and poststructuralism, which informed this thesis, provided the opportunity to challenge assumptions about power and knowledge in the child health context. Analysis of the discourses generated by interviews with five Plunket nurses revealed that, contrary to the claims in the official literature, the relationship between the Plunket nurse and the mother is not that of an equal partnership but is constituted in various and unexpected ways. It was through the nurses' discourses of surveillance that the power relations underpinning this relationship were surfaced. While these discourses suggested that many mothers who use the nursing service are actively involved on their own terms, there are a number of women for whom the surveillance activities of the nurse have been shown to be particularly intrusive (Mayall 1986; Clinton 1988; Bloor and McIntosh 1990; Knott and Latter 1999). It may be primarily this unwelcome surveillance which accounts for the considerable number of women who, the statistics show, cease using Plunket services particularly in the early months. It is perhaps for this reason that the nurses in this study locate themselves as being caught between divergent discourses of support and surveillance. Findings indicate that the resolution of this dilemma by abandoning surveillance practices might improve maternal satisfaction with the Plunket nursing service. The author concludes that a child health service responsive to mothers' stated needs rather than institutional requirements or the nurse's own agenda could lead to a more open and equal relationship between mother and nurse. This relationship would be likely to benefit mothers and babies and, at the same time, enhance both nursing practice and nurses' satisfaction with their work. |
| Call Number |
NRSNZNO @ research @ |
Serial |
899 |
| Permanent link to this record |
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| Author |
Foster, M.J.; Al-Modaq, M.; Carter, B.; Neill, S.; O'Sullivan, T.; Quaye, A.A.; Majamanda, M.; Abdullah, K.; Hallstrom, I.K.; English, C.; Vickers, A.; Coyne, I., Adama, E.; Morelius, E. |
| Title |
Seeing lockdown through the eyes of children from around the world: Reflecting on a children's artwork project |
Type |
Journal Article |
| Year |
2021 |
Publication |
Nursing Praxis in Aotearoa New Zealand |
Abbreviated Journal |
|
| Volume |
37 |
Issue |
3 |
Pages |
104-115 |
| Keywords |
Child health; Mental health; Pandemics; COVID-19; Children's art |
| Abstract |
Illustrates the impact of the pandemic and children's experiences of lockdowns through their artwork. Describes a cross-cultural project in which members of the International Network for Child and Family-Centered Care collaborated to elicit children's responses to being locked down, compiling their artistic expressions into an eBook. Invites child and family nurses to use the insights provided to inform their interactions with children. |
| Call Number |
NZNO @ research @ |
Serial |
1739 |
| Permanent link to this record |
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| Author |
Lowson, S. |
| Title |
Sacred memories: Creative art therapy for children in grief |
Type |
|
| Year |
2004 |
Publication |
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Abbreviated Journal |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Children; Grief; Nursing; Terminal care; Psychology |
| Abstract |
This paper explores the creative opportunities children might have to attend to their emotions and feelings following the death of a parent, grandparent or close friend. It presents the position that often children are left out of the process of caring for an adult when they are terminally ill and that has long term psychological implications. It also suggests that this has antecedents for the white New Zealand culture that were noted historically. In this research the author describes a personal journey that has shaped her current work as a hospice practice manager. The writer explores literature in psychological aspects of removing children from the dying room, creative therapies and the importance of sacred memories for the living child. The need to create memory that will embrace the child as a cloak enfolds them in their crisis stimulated the writer to offer a text in the personal narrative form. This text is presented in this form to enable other clinicians to access their own memories as survivors of grief in their own families. It is suggested that by enabling children and family to explore the importance of relating in the palliative phase of a person's life journey, good memories are created for the survivors. |
| Call Number |
NRSNZNO @ research @ 1245 |
Serial |
1230 |
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| Author |
Watson, Paul |
| Title |
Preschool children frequently seen but seldom heard in nursing care |
Type |
Journal Article |
| Year |
2008 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
|
| Volume |
24 |
Issue |
3 |
Pages |
41-48 |
| Keywords |
Preschool children; Children's voices; Paediatric nursing |
| Abstract |
Maintains that children's voices are largely unheard in nursing practice. Recommends the need for research that seeks to understand how preschool children experience being ill and how they communicate those experiences to others. |
| Call Number |
NZNO @ research @ |
Serial |
1438 |
| Permanent link to this record |
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| Author |
Watson, P, B. |
| Title |
Positive pressure intravenous access ports on central venous devices in children: An evidence-based review |
Type |
Journal Article |
| Year |
2010 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
NZNO Library |
| Volume |
1 |
Issue |
1 |
Pages |
12-18 |
| Keywords |
Venous pressure; Central venous pressure; Central venous catheters; Catheter-related infections; Children |
| Abstract |
This research aimed to assess the evidence for benefits and risks of positive pressure mechanical valve (PPMV) intravenous access ports on central nervous system devices (CVADs) in children. PPMVs on CVADs have been promoted as preventing occlusion and the need for heparin flushing. A search for primary research to March 2010 was conducted using MEDLINE, EMBASE and CINAHL. There is sufficient evidence that some models of PPMV intravenous access ports on CVADs, when flushed with normal saline, are associated with increased bloodstream infections in children. Further research is required. |
| Call Number |
NZNO @ research @ |
Serial |
1340 |
| Permanent link to this record |
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| Author |
Isaac, D. |
| Title |
Passionate dedication: A qualitative descriptive study of nurses' and hospital play specialists' experiences on a children's burn ward |
Type |
|
| Year |
2006 |
Publication |
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Abbreviated Journal |
Auckland University of Technology Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Children; Nursing specialties; Mentoring; Job satisfaction |
| Abstract |
A qualitative descriptive approach was undertaken to explore the experience of eight registered nurses and two hospital play specialists who care for children hospitalised with burn injuries. The research participants were recruited from a paediatric ward that offers centralised specialty care to children with burns. Emerging out of the data was the over-arching theme of 'passionate dedication' that shows the nurses and hospital play specialists genuine compassion and commitment to meet the needs of the children with burns. The findings of the study reveal that the participant's dedication is shaped and determined by a dynamic process that involves having professional integrity and in-depth knowledge of caring for children and burn management. The nurses and the hospital play specialists have a common understanding of what their role entails and the skills required to provide quality care and support to the children and the children's family. On a personal and professional level the participants encounter several challenges in this care context that are physically and emotionally overwhelming. Despite becoming overwhelmed the participants are revealed as being resourceful and resilient in their aptitude to find ways that enable them to cope and get through. The author suggests that this study supports international literature that suggests that caring for children with burns is equally rewarding, as much as it is physically and emotionally demanding. The author identifies that the implication in this study for the organisation is to seriously consider issues regarding productivity and efficiency of the workforce with acknowledgement that nurses and hospital play specialists cannot do this emotional work without effective systems of support in place. |
| Call Number |
NRSNZNO @ research @ 577 |
Serial |
563 |
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| Author |
McKelvie, R. |
| Title |
Partnership in paediatric nursing: A descriptive exploration of the concept and its practice |
Type |
|
| Year |
2001 |
Publication |
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Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Paediatric nursing; Parents and caregivers; Children; Relationships |
| Abstract |
A 50 point research project presented in partial fulfilment of the requirements for the degree of Master of Nursing at Massey University. |
| Call Number |
NRSNZNO @ research @ 484 |
Serial |
471 |
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| Author |
Rickard, Debbie |
| Title |
Parents as experts: partnership in the care of the chronically ill children : Margaret May Blackwell Travel Study, Fellowship for Nurses of Young Children, 1999 |
Type |
Report |
| Year |
1999 |
Publication |
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Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
65p. |
| Keywords |
Chronically ill children – home care; Child health services; Paediatric nursing; Community health nursing; Reports |
| Abstract |
Visits paediatric community nursing services in the UK and Australia to report on how specialist and children's community nurses work with parents to deliver health care to children with asthma, diabetes and other endocrine disorders, cystic fibrosis, eczema, cardiac diseases, and liver transplants. Part of the Margaret May Blackwell Scholarship Reports series. |
| Call Number |
NZNO @ research @ |
Serial |
1414 |
| Permanent link to this record |
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| Author |
Woods, M. |
| Title |
Parental resistance. Mobile and transitory discourses: A discursive analysis of parental resistance towards medical treatment for a seriously ill child |
Type |
|
| Year |
2008 |
Publication |
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Abbreviated Journal |
NZNO Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Parents and caregivers; Pacific peoples; Communication; Children; Chronically ill |
| Abstract |
This qualitative thesis uses discourse analysis to examine parental resistance towards medical treatment of critically ill children. It is an investigation of the 'mobile and transitory' discourses at play in instances of resistance between parents, physicians and nurses within health care institutions, and an examination of the consequences of resistance through providing alternative ways of perceiving and therefore understanding these disagreements. The philosophical perspectives, methodology and methods used in this thesis are underpinned by selected ideas taken from the works of Michel Foucault and Pierre Bourdieu and supported by relevant literature in the fields of media, law, children, parenting, caring, serious childhood illness, medicine and nursing. It is argued that from an examination of interview based texts, parental resistance is an omnipresent but transitory occurrence that affects many of the interactions between the parents of seriously ill children and clinical staff. It is maintained that within these interactions, the seeds of this resistance are sown in both critical decision making situations and in everyday occurrences between doctors, nurses and parents within healthcare institutions. Contributing factors to parental resistance include the use of power games by staff, the language of medicine, forms of symbolic violence, the presence or absence of trust between parents and medical staff, the effects of medical habitus, and challenges to the parental role and identity. Overall, it is proposed in this thesis that parents who resist treatment for their seriously ill child are not exceptions to the normative patient-physician relationship. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1140 |
| Permanent link to this record |
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| Author |
Deo, Lalesh |
| Title |
Parental needs and nursing response following SUFE Surgery; An interpretive descriptive study |
Type |
Book Whole |
| Year |
2021 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
141 p. |
| Keywords |
Slipped Upper Femoral Epiphysis (SUFE); Parents and Caregivers; Child health; Maori children; Pacific children; Paediatric nurses |
| Abstract |
Examines the experiences of parents and nurses in caring for a child following invasive Slipped Upper Femoral Epiphysis (SUFE) repair. Conducts semi-structured interviews with parents of five children, predominantly Māori or Pacific, who underwent SUFE repair, and five paediatric nurses caring for the children and their families in the hospital ward. Offers two perspectives of the journey for these parents following such an injury, from the child's hospitalisation to caring for these children once they are home. Presents and contrasts these perspectives, revealing insights into the parents' ongoing need for support, information and planning for care, and nurses' efforts to meet these needs. Presents implications for nursing practice. |
| Call Number |
NZNO @ research @ |
Serial |
1741 |
| Permanent link to this record |
