| Records |
| Author |
Campbell, K. |
| Title |
Experiences of rural women who have cared for their terminally ill partners |
Type |
Book Chapter |
Year  |
2008 |
Publication |
Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) |
Abbreviated Journal |
Ministry of Health publications page |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing |
| Abstract |
This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role. |
| Call Number |
NRSNZNO @ research @ 776 |
Serial |
760 |
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| Author |
Woods, M. |
| Title |
Parental resistance. Mobile and transitory discourses: A discursive analysis of parental resistance towards medical treatment for a seriously ill child |
Type |
|
| Year |
2008 |
Publication |
|
Abbreviated Journal |
NZNO Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Parents and caregivers; Pacific peoples; Communication; Children; Chronically ill |
| Abstract |
This qualitative thesis uses discourse analysis to examine parental resistance towards medical treatment of critically ill children. It is an investigation of the 'mobile and transitory' discourses at play in instances of resistance between parents, physicians and nurses within health care institutions, and an examination of the consequences of resistance through providing alternative ways of perceiving and therefore understanding these disagreements. The philosophical perspectives, methodology and methods used in this thesis are underpinned by selected ideas taken from the works of Michel Foucault and Pierre Bourdieu and supported by relevant literature in the fields of media, law, children, parenting, caring, serious childhood illness, medicine and nursing. It is argued that from an examination of interview based texts, parental resistance is an omnipresent but transitory occurrence that affects many of the interactions between the parents of seriously ill children and clinical staff. It is maintained that within these interactions, the seeds of this resistance are sown in both critical decision making situations and in everyday occurrences between doctors, nurses and parents within healthcare institutions. Contributing factors to parental resistance include the use of power games by staff, the language of medicine, forms of symbolic violence, the presence or absence of trust between parents and medical staff, the effects of medical habitus, and challenges to the parental role and identity. Overall, it is proposed in this thesis that parents who resist treatment for their seriously ill child are not exceptions to the normative patient-physician relationship. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1140 |
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| Author |
Desmond, N. |
| Title |
Aspects of nursing in the general practice setting and the impact on immunisation coverage |
Type |
|
| Year |
2007 |
Publication |
|
Abbreviated Journal |
University of Auckland Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Immunisation; Primary health care; Nursing |
| Abstract |
|
| Call Number |
NRSNZNO @ research @ 510 |
Serial |
496 |
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| Author |
Roberts, C. |
| Title |
The influence of nursing culture on family visiting in adult intensive care units |
Type |
|
| Year |
2007 |
Publication |
|
Abbreviated Journal |
Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Intensive care nursing; Nurse-family relations; Culture; Nursing |
| Abstract |
This dissertation considers the implications of the relationship between nurses and the patient's family, when family members visit intensive care units (ICUs) following the acute admission of a relative there. In particular it explores the issues of power and control, nurses might have in this setting, the culture that supports that, and the implications this has for practice in the New Zealand context. A comprehensive literature review on the perspective of nurses in relation to relatives visiting adult intensive care units was conducted. The author concludes that nurses modify policies related to visiting access for family members to suit themselves, and the needs of their patient. Nurses use a variety of tactics to maintain a position of power and control by looking out for themselves first, their patient second, and relatives third. The need of the patient and their families is not well understood by nurses, and nurses feel they have inadequate skills to cope with the needs and stresses of visiting relatives. The author suggests that for nurses to provide family focused care in ICU they must develop a therapeutic relationship with all concerned. ICU nursing culture affects nurses ability to focus on caring for their patients and their families. Nurses in ICU appear to need to maintain power and control over their environment but further research is needed to identify the current situation in New Zealand ICUs. |
| Call Number |
NRSNZNO @ research @ |
Serial |
502 |
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| Author |
Tritschler, E.; Yarwood, J. |
| Title |
Relating to families through their seasons of life: An indigenous practice model |
Type |
Journal Article |
| Year |
2007 |
Publication |
Kai Tiaki: Nursing New Zealand |
Abbreviated Journal |
|
| Volume |
13 |
Issue |
5 |
Pages |
18-3 |
| Keywords |
Parents and caregivers; Nursing models; Nurse-family relations; Communication |
| Abstract |
In this article the authors introduce an alternative way that nurses can be with families, using a relational process that can enhance nurses' responses when working with those transitioning to parenthood. Seasons of Life, a framework adapted from the Maori health model He Korowai Oranga, emerged from practice to offer a compassionate and encouraging stance, while at the same time respecting each family's realities and wishes. The model allows the exploration of the transition to parenthood within a wellness model, and takes a strengths-based approach to emotional distress. This approach provides a sense of “normality”, rather than of pathology, for the emotions experienced by new parents. The specific issues men may face are discussed, where despite recent culture change that allows men a more nurturing parental role, there is still no clear understanding of how men articulate their sense of pleasure or distress at this time. Practitioners are encouraged to examine their own assumptions, values and beliefs, and utilise tools such as reflective listening, respect, insight and understanding. The most significant aspect of relationship between nurse and parents is not the outcome, but how nurses engage with families. Examples from practice will demonstrate some of the differing ways this relational process framework has been effective. |
| Call Number |
NRSNZNO @ research @ 1007 |
Serial |
991 |
| Permanent link to this record |
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| Author |
Marlow, S.A. |
| Title |
A voyage of grief and beauty: A phenomenological study of the experience of supporting a family member with an intellectual disability who is dying in a community setting |
Type |
|
| Year |
2007 |
Publication |
|
Abbreviated Journal |
Research Archive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Terminal care; Parents and caregivers; People with disabilities |
| Abstract |
This thesis reports on a research project which explored the phenomenon of supporting a family member with an intellectual disability who is dying in a community setting. The research purpose was to enhance professional understanding of what it is like to encounter this lived experience. Literature back-grounding the phenomenon and philosophical and theoretical constructs embraced by the researcher are outlined. An explanation is given of the hermeneutic phenomenological methodology which was utilised. The main method of collecting research data was through conducting five open-ended interviews with participants who had supported a dying child or sibling. The participants' family members were aged between 3 and 52 years old at the time of their deaths. Their specific intellectual disabilities included Down syndrome, a metabolically induced disorder and a non-identified syndrome. The family members had died from a variety of terminal illnesses and in a range of community settings. Interpretive analysis was achieved through reflexive journaling and hermeneutic intuiting of interview transcripts and field notes. The research findings have been subjected to rhetorical consideration in the light of further literature and poetic texts. Research findings are expressed metaphorically as groups of boulders representing themes and sub-themes. Three major themes were revealed as having impacted on the river voyage shared by participants and their dying family members. These were Interlocked Companionship, Search for New Balance and Permeable Interaction. An assessment is offered of the strengths and weaknesses of the research project. The thesis concludes with recommendations for reflective practice, evidence based practice, service development and areas of future research. |
| Call Number |
NRSNZNO @ research @ 1144 |
Serial |
1129 |
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| Author |
McNamara, N. |
| Title |
The meaning of the experience for ICU nurses when a family member is critically ill: A hermeneutic phenomenologcial study |
Type |
|
| Year |
2007 |
Publication |
|
Abbreviated Journal |
NZNO Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Intensive care nursing; Nurse-family relations |
| Abstract |
This study provides insight into the experience of being an ICU nurse and relative of a critically ill patient. Analysis of data from interviews of four ICU nurses who had experienced having a family member admitted to ICU brought up several themes. These included: a nurses' nightmare, knowing and not knowing, feeling torn, and gaining deeper insight and new meaning. Recommendations for organisational support for ICU nurse/relatives, and education for staff are made, based on the findings. |
| Call Number |
NRSNZNO @ research @ 1312 |
Serial |
1296 |
| Permanent link to this record |
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| Author |
Blanchard, D.L. |
| Title |
Developing the place and role of family within the culture of critical care nursing: An action research approach |
Type |
|
| Year |
2006 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Relationships; Nurse-family relations; Intensive care nursing; Nursing research |
| Abstract |
This research examines how nurses negotiate the context of the Intensive Care Unit (ICU) while working with families. The action research described in this thesis developed through a series of meetings and conversations where the conversations supported the reflexive intent of the research. In commissioning the research, the design of the meetings and conversations were as a series of overlapping actions. Data collection and data analysis occurred in the action research by meetings, reflective conversations, ad libitum observations, and in a research journal. Conceptual maps explain the progress and findings of the research in this thesis while categories distilled from the conversations also support the findings in the research. The Family Action Research Group that was established within this project proposed a Family Assessment Form for the family to provide an assessment of themselves and the patient. Implementing this assessment tool demonstrated that clear information was needed for the family in the ICU. Findings in this research focus on developing action research and family care in ICU. Findings also focused on the role of the researcher being of and not being of the context where action research is undertaken. Recommendations include staff examining relationships for potential asymmetries and seeking ways to address these to support families and staff. Suggested strategies for developing action research in a clinical context include detailed planning, clear focusing, transparency of data, and working to explain change initiatives through the research are also included. |
| Call Number |
NRSNZNO @ research @ 494 |
Serial |
480 |
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| Author |
Garlick, A. |
| Title |
Determined to make a difference: A study of public health nursing practice with vulnerable families |
Type |
|
| Year |
2006 |
Publication |
|
Abbreviated Journal |
Massey University Library, NZNO Library |
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Public health; Children; Nurse-family relations |
| Abstract |
|
| Call Number |
NRSNZNO @ research @ 737 |
Serial |
723 |
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| Author |
Cleaver, H. |
| Title |
Reflections on knowing, not knowing and being in palliative care nursing |
Type |
|
| Year |
2005 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Palliative care; Nursing; Terminal care; Nurse-family relations; Nurse-patient relations |
| Abstract |
The author notes that responses to questions from dying people and their families are as individual as each nurse, patient, family member, or situation. This is well recognised and an unspoken truth in palliative care practice. This paper explores the subjective nature of knowledge in palliative care generated through capturing moments of practice and subsequent reflections. This demonstrates how the author uses her model of care to open a space that enables the person and their family to find meaning from their experience and articulate what they need at the time. The author identifies her interest in the paradoxical reality of knowing and not knowing and describes how that paradox contributes to her role in supporting individuals' needs within their realities. |
| Call Number |
NRSNZNO @ research @ |
Serial |
511 |
| Permanent link to this record |
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| Author |
Gasquoine, S.E. |
| Title |
Mothering a hospitalized child: It's the 'little things' that matter |
Type |
Journal Article |
| Year |
2005 |
Publication |
Journal of Child Health Care |
Abbreviated Journal |
coda, An Institutional Repository for the New Zealand ITP Sector |
| Volume |
9 |
Issue |
3 |
Pages |
186-195 |
| Keywords |
Nurse-family relations; Parents and caregivers; Paediatric nursing; Children |
| Abstract |
This article reports one aspect of a phenomenological study that described the lived experience of mothering a child hospitalised with acute illness or injury. The significance for mothers that nurses do the 'little things' emerged in considering the implications of this study's findings for nurses in practice. Seven mothers whose child had been hospitalised in the 12 months prior to the first interview agreed to share their stories. The resulting data were analysed and interpreted using van Manen's interpretation of phenomenology. This description of mothering in a context of crisis is useful in the potential contribution it makes to nurses' understanding of mothers' experience of the hospitalisation of their children. It supports the philosophy of family-centred care and highlights the ability of individual nurses to make a positive difference to a very stressful experience by acknowledging and doing 'little things', because it is the little things that matter to the mothers of children in hospital. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1053 |
| Permanent link to this record |
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| Author |
Litchfield, M. |
| Title |
The nursing praxis of family health |
Type |
Book Chapter |
| Year |
2005 |
Publication |
Picard, C & Jones, D., Giving voice to what we know (pp.73-82) |
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
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| Keywords |
Nursing research; Nursing philosophy; Nurse-family relations |
| Abstract |
The chapter explores the process of nursing practice and how it contributes to health, derived from research undertaken in New Zealand. It presents the nature of nursing research as if practice – the researcher as if practitioner – establishing a foundation for the development of nursing knowledge that would make a distinct contribution to health and health care. It includes the philosophy and practicalities of nursing through the use of a case study of nursing a family with complex health circumstances. |
| Call Number |
NRSNZNO @ research @ 1185 |
Serial |
1170 |
| Permanent link to this record |
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| Author |
Hall, J. |
| Title |
Building trust to work with a grounded theory study of paediatric acute care nurses work |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
Auckland University of Technology Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations; Nurse-patient relations; Children; Paediatric nursing; Intensive care nursing |
| Abstract |
Grounded theory methodology has guided the grounded theory methods used to explore the acute care paediatric nurses' perspective of what they do when a child has had a severe accident. The research was initiated from the experience of nursing children in the context of a rehabilitation centre and wondering how acute care nurses promoted a child's recovery after a severe unintentional injury. Many avenues were used to search international and New Zealand literature but the scarcity of literature related to what acute care paediatric nurses do was evident. Nursing children in the acute care ward after a severe accident is complex. It encompasses nursing the family when they are experiencing a crisis. It is critical that the acute care nurse monitors and ensures the child's physiological needs are met, and the nurse “works with” the child to maintain and advance medical stability. Nursing interactions are an important part of “working with”, communication is the essence of nursing. This research has focussed on the nurses' social processes whilst caring for the physical needs of the child and interacting with the family and multidisciplinary team when appropriate. An effective working-relationship with a nurse and family is founded on trust. Grounded theory methods supported the process of exploring the social processes of “building trust” whilst “working with” families in a vulnerable position. Nurses rely on rapport to be invited into a family's space to “work with” and support the re-establishment of the parenting role. The “stepping in and out” of an effective working-relationship with a family is reliant on trust. Nurses build trust by spending time to “be with”, using chat to get to know each other, involving and supporting the family to parent a “different” child and reassuring and giving realistic hope to help the child and parents cope with their changed future. A substantive theory of the concept of “building trust to work with” has been developed using grounded theory methods. The theory has been conceptualised using the perspective of seven registered nurses working in paediatric acute care wards that admit children who have had a severe traumatic accident. |
| Call Number |
NRSNZNO @ research @ |
Serial |
597 |
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| Author |
Rochford, N.M. |
| Title |
As a nurse in the family: Three women's stories of what it means for a female nurse to be caregiver to a family member who is ill, elderly or with an enduring illness |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Nurse-family relations |
| Abstract |
In this research, three female registered nurses relived their experiences of being caregiver to a family member who was ill, elderly or had an enduring illness and explored whether they chose, or felt obligated, to assume the role of caregiver because they were nurses. This research was an exploratory descriptive study utilising narrative as inquiry and the method of story-telling. It is women-centered, taking into account the unpaid role of caregiving within families most often fulfilled by women. Four main themes were identified and renamed to highlight research findings – these were the culture of nursing, silence of the nurses, emotional cloudiness, and the natural role of the nurse. Through this study it is hoped that nurses will be more aware of the impact their caregiving roles have had on their lives. The importance in acknowledging the effects of caregiving, relevance of informing employers to promote supportiveness, implications for workforce development and recognising the loss of objectivity in caring when emotions are involved, are identified in this research. The author suggests that further indepth research about these concepts would be a valuable contribution to the nursing profession and ideas for future research have been identified. |
| Call Number |
NRSNZNO @ research @ |
Serial |
802 |
| Permanent link to this record |
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| Author |
Campbell, K. |
| Title |
Intertwining the role of partner and caregiver: A phenomenological study of the experiences of four New Zealand rural women who have cared for their terminally ill partners |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Rural nursing; Terminal care; Palliative care; Home care; Nurse-family relations |
| Abstract |
The stories of the women who live and work in rural settings in New Zealand have begun to reveal unique contributions that they have made to their families and community. This research study evolved from a trend the researcher observed as a district nurse providing community palliative care in rural New Zealand; that the majority of carers of those who are terminally in home-settings are in fact women. This qualitative study aimed to explore through guided conversational interviews the experiences of four women who have cared for their terminally ill partners who have subsequently died. The study investigated if these women's experiences were comparable to that of other women in existing palliative care literature. This research project focused particularly on elucidating the women's experience of intertwining the role of partner and caregiver. Heidegger's hermeneutic philosophy informed the methodology because he focused on what it meant to 'be' rather than 'how we know what we know'. The project focused on the meanings the women made of this dual role in their lives. Women already in the role of partner were now faced with the added responsibility of caregiver to meet the complex needs of their loved one. Usually they had no training to prepare them for this experience. The study reveals ways in which the visiting palliative care nurse becomes very important to them. The women's own voices reveal the high level of respect for their partners and address the harsh realities, revealing poignant and striking concerns in their lives. These stories are shared with the intent of enriching nurses' and other health professionals' understanding of the women's experiences. The author notes that understanding these women's experience is not only a way of honouring these remarkable women but more widely it will inform and possibly transform practice through guideline and policy refinement. |
| Call Number |
NRSNZNO @ research @ |
Serial |
822 |
| Permanent link to this record |
