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Author  |
Marlow, S.A. |
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Title |
A voyage of grief and beauty: A phenomenological study of the experience of supporting a family member with an intellectual disability who is dying in a community setting |
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Year |
2007 |
Publication |
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Abbreviated Journal |
Research Archive@Victoria |
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Issue |
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Pages |
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Keywords |
Nurse-family relations; Terminal care; Parents and caregivers; People with disabilities |
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Abstract |
This thesis reports on a research project which explored the phenomenon of supporting a family member with an intellectual disability who is dying in a community setting. The research purpose was to enhance professional understanding of what it is like to encounter this lived experience. Literature back-grounding the phenomenon and philosophical and theoretical constructs embraced by the researcher are outlined. An explanation is given of the hermeneutic phenomenological methodology which was utilised. The main method of collecting research data was through conducting five open-ended interviews with participants who had supported a dying child or sibling. The participants' family members were aged between 3 and 52 years old at the time of their deaths. Their specific intellectual disabilities included Down syndrome, a metabolically induced disorder and a non-identified syndrome. The family members had died from a variety of terminal illnesses and in a range of community settings. Interpretive analysis was achieved through reflexive journaling and hermeneutic intuiting of interview transcripts and field notes. The research findings have been subjected to rhetorical consideration in the light of further literature and poetic texts. Research findings are expressed metaphorically as groups of boulders representing themes and sub-themes. Three major themes were revealed as having impacted on the river voyage shared by participants and their dying family members. These were Interlocked Companionship, Search for New Balance and Permeable Interaction. An assessment is offered of the strengths and weaknesses of the research project. The thesis concludes with recommendations for reflective practice, evidence based practice, service development and areas of future research. |
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Call Number |
NRSNZNO @ research @ 1144 |
Serial |
1129 |
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Author |
Martin, M. |
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Title |
A grain of salt ...: A contemplative study of natural form in nursing, developed in collaboration with people in life-threatening and life-challenging situations to reveal untold stories of healing |
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Year |
2000 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Terminal care; Nurse-patient relations |
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Abstract |
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Call Number |
NRSNZNO @ research @ |
Serial |
1267 |
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Author |
Polaschek, N. |
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Title |
Living on dialysis: Concerns of clients in a renal setting |
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Journal Article |
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Year |
2003 |
Publication |
Journal of Advanced Nursing |
Abbreviated Journal |
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Volume |
41 |
Issue |
1 |
Pages |
44-52 |
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Keywords |
Nurse-patient relations; Psychology; Attitude to health; Terminal care |
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Abstract |
This article reports a study that sought to understand the experience of a group of Caucasian men with end stage renal failure managing their own haemodialysis therapy in their homes. The study used a critical interpretive methodology. The renal setting was critically viewed as a specialised health care context constituted by several interrelated discourses. Although established by the dominant professional discourse, it also includes a number of others, in particular an obscure client discourse that is a response to the dominant discourse. Initially, participants' own interpretations of their individual experiences were outlined. These were then collectively reinterpreted by contextualising them in terms of the critical view of the renal setting, in order to discern their own views as renal clients that were obscured by the language and ideas of the dominant discourse with which they had been enculturated. From an analysis of the set of accounts derived from interviews with six participants, four concerns of the renal client discourse were identified. These concerns were: (1) suffering from continuing symptoms of end stage renal failure and dialysis; (2) limitations resulting from negotiating dialysis into their lifestyle; (3) ongoingness and uncertainty of life on dialysis; and (4) altered relationship between autonomy and dependence inherent in living on dialysis. One specific implication of this study is that the distinctive potential of the nursing role in renal settings lies beyond the performance of a range of technical tasks, in addressing the experience of people living on dialysis, described here as the concerns of the renal client discourse. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1072 |
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Author |
Richardson, C.A. |
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Title |
Ever decreasing circles: Non-curative terminal illness, empowerment and decision making: Lessons for nursing practice |
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Year |
2005 |
Publication |
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Abbreviated Journal |
University of Otago Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Nursing; Palliative care; Terminal care; Psychology |
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Abstract |
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Call Number |
NRSNZNO @ research @ 683 |
Serial |
669 |
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Author |
Spackman, N. E. |
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Title |
Nurses' early experiences with patient death |
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Year |
2008 |
Publication |
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Abbreviated Journal |
NZNO Library |
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Volume |
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Issue |
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Pages |
156 pp |
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Keywords |
New graduate nurses; Terminal care |
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Abstract |
Chronic stress and 'burnout' have been extensively researched in nursing populations, but very little is known about the impact of specific acutely stressful or significant events. A novice nurse's first encounter with patient death may pose considerable cognitive, emotional and clinical challenges. Using a mixed methods design, this study explored the clinical circumstances, impact and challenges and rewards of nurses' early experiences with patient death. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1292 |
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