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Author |
Campbell, K. |
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Title |
Experiences of rural women who have cared for their terminally ill partners |
Type |
Book Chapter |
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Year |
2008 |
Publication |
Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) |
Abbreviated Journal |
Ministry of Health publications page |
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Volume |
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Pages |
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Keywords  |
Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing |
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Abstract |
This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role. |
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Call Number |
NRSNZNO @ research @ 776 |
Serial |
760 |
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Author |
Woods, M. |
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Title |
Balancing rights and duties in 'life and death' decision making involving children: A role for nurses? |
Type |
Journal Article |
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Year |
2001 |
Publication |
Nursing Ethics |
Abbreviated Journal |
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Volume |
8 |
Issue |
5 |
Pages |
397-408 |
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Keywords |
Parents and caregivers; Children; Ethics; Clinical decision making; Nurse-family relations; Chronically ill |
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Abstract |
This article examines a growing number of cases in New Zealand in which parents and guardians are required to make life and death ethical decisions on behalf of their seriously ill child. Increasingly, nurses and other practitioners are expected to more closely inform, involve and support the rights of parents or guardians in such situations. Differing moral and ethical values between the medical team and parents or guardians can lead to difficult decision making situations. The article analyses the moral parameters, processes, outcomes and ethical responses that must be considered when life and death ethical decisions involving children are made. It concludes with a recommendation that nurses should be recognised as perhaps the most suitable of all health care personnel when careful mediation is needed to produce an acceptable moral outcome in difficult ethical situations. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1086 |
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Author |
Mockford, A. |
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Title |
An exploratory descriptive study of the needs of parents after their young child is discharged from hospital following an admission with an acute illness |
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Year |
2008 |
Publication |
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Abbreviated Journal |
ResearchArchive@Victoria |
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Volume |
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Issue |
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Pages |
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Keywords |
Parents and caregivers; Health knowledge; Children; Maori; Pacific peoples |
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Abstract |
This study investigated issues surrounding the high numbers of preventable admissions of young children with acute illnesses, particularly amongst Maori and Pacific children. It focuses on what happens once these children are discharged. Its aims were to find out what the expressed needs of parents were, as they cared for their child, once home. Whilst there has been a small amount of international research undertaken in this area, there is little known about expressed parent need in the New Zealand context. This exploratory descriptive study involved parents of under five year old children, who had been admitted to a hospital, with one of five acute illnesses. Eighteen parents were surveyed over the telephone. This study found the parents expressed a need for reassurance and advice once home, and that they worried about their child getting sick again. It highlighted gaps in discharge planning and support. None of the parents had received a written discharge plan for their child. Only five parents had received either a contact number for advice or a referral back to their primary care provider. This study found that whilst some parents considered their discharge needs had been met, others considered that they had not. Four local discharge practice opportunities to support these families were recommended, these included, providing parents and caregivers with an individualised written discharge plan, giving a contact number for advice after discharge, offering a follow-up phone call in the first 48 hours, and ensuring that all children have a referral back to their primary health care provider. Areas for further research were highlighted, including the need for a larger study to explore and compare the needs of rural and urban parents, and Maori and Pacific parents. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1232 |
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Author |
Tritschler, E.; Yarwood, J. |
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Title |
Relating to families through their seasons of life: An indigenous practice model |
Type |
Journal Article |
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Year |
2007 |
Publication |
Kai Tiaki: Nursing New Zealand |
Abbreviated Journal |
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Volume |
13 |
Issue |
5 |
Pages |
18-3 |
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Keywords |
Parents and caregivers; Nursing models; Nurse-family relations; Communication |
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Abstract |
In this article the authors introduce an alternative way that nurses can be with families, using a relational process that can enhance nurses' responses when working with those transitioning to parenthood. Seasons of Life, a framework adapted from the Maori health model He Korowai Oranga, emerged from practice to offer a compassionate and encouraging stance, while at the same time respecting each family's realities and wishes. The model allows the exploration of the transition to parenthood within a wellness model, and takes a strengths-based approach to emotional distress. This approach provides a sense of “normality”, rather than of pathology, for the emotions experienced by new parents. The specific issues men may face are discussed, where despite recent culture change that allows men a more nurturing parental role, there is still no clear understanding of how men articulate their sense of pleasure or distress at this time. Practitioners are encouraged to examine their own assumptions, values and beliefs, and utilise tools such as reflective listening, respect, insight and understanding. The most significant aspect of relationship between nurse and parents is not the outcome, but how nurses engage with families. Examples from practice will demonstrate some of the differing ways this relational process framework has been effective. |
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Call Number |
NRSNZNO @ research @ 1007 |
Serial |
991 |
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Author |
Gage, J.; Everrett, K.D.; Bullock, L. |
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Title |
Integrative review of parenting in nursing research |
Type |
Journal Article |
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Year |
2006 |
Publication |
Journal of Nursing Scholarship |
Abbreviated Journal |
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Volume |
38 |
Issue |
1 |
Pages |
56-62 |
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Keywords |
Parents and caregivers; Nursing research; Evaluation |
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Abstract |
The authors synthesise and critically analyse parenting research in nursing. They focused on studies published between 1993 and 2004 by nurse researchers in peer-reviewed journals. Data were organised and analysed with a sample of 17 nursing research studies from core nursing journals. The majority of parenting research has been focused on mothers, primarily about parenting children with physical or developmental disabilities. Research about fathers as parents is sparse. Parenting across cultures, parenting in the context of family, and theoretical frameworks for parenting research are not well developed. The authors conclude that the scope of nursing research on parenting is limited. |
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Call Number |
NRSNZNO @ research @ |
Serial |
709 |
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Author |
Blackie, S.A.H. |
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Title |
Women, work, study and health: The experience of nurses engaged in paid work and further education |
Type |
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Year |
2001 |
Publication |
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Abbreviated Journal |
Massey University Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Parents and caregivers; Nursing; Education |
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Abstract |
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Call Number |
NRSNZNO @ research @ |
Serial |
789 |
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Author |
Murphy, S.E.E. |
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Title |
Through mothers' eyes: The lived experience of caring for a child who has undergone and recovered from a liver transplantation |
Type |
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Year |
2008 |
Publication |
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Abbreviated Journal |
ResearchArchive@Victoria |
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Volume |
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Issue |
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Pages |
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Keywords |
Parents and caregivers; Paediatric nursing; Children; Surgery |
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Abstract |
Mothers, whose children had undergone a liver transplant more than one year ago at time of interview and whose children were outpatients of Starship Children's Hospital, were invited to participate in this research. A Heideggerian hermeneutic phenomenological approach, informed by the work of van Manen (1990) was used. Three mothers of children who had received a liver transplant were interviewed to reveal the meanings of the phenomenon – what is the meaning of lived experience of mothers in caring for their child who has undergone and recovered following liver transplantation? Little previous study regarding mothers' lived experience of caring for their child, who had recovered from a liver transplant, was found in the literature. The emerging themes were punctuated with stress being a consistent feature. Utilising Ruddick's (1983) concepts of maternal thinking, the emerging themes were merged within the three interests governing maternal practice; preservation, growth and acceptability. The absolute capacity for attentive love draws the experience together. An essential theme identified out of the analysis was the concept of survival relating to the unique features of liver transplantation and the consequences of liver rejection and failure. The findings contribute to the understanding of the phenomenon, emphasising the need for good support systems for families of children who have undergone transplantation; assistance in the establishment of maternal coping strategies and regular feedback on the children's progress acknowledging the role and care provided by mothers. |
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Call Number |
NRSNZNO @ research @ 1242 |
Serial |
1227 |
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Author |
Adams-Smith, P.H. |
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Title |
An exploration of issues of primary health services for Taranaki Te Atiawa children based on the expectations and perceptions of their female caregivers |
Type |
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Year |
2002 |
Publication |
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Abbreviated Journal |
http://hdl.handle.net/10063/75 |
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Volume |
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Issue |
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Pages |
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Keywords |
Parents and caregivers; Primary health care; Access; Maori; Children |
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Abstract |
The intention of this research is, through collaborative discussion and selective conversations, to explore female caregivers' expectations and perceptions of primary health services for some Te Atiawa Maori children. The research process was developed in a partnership between the Maori women participants and the researcher. In addition, two local kuia actively participated in and supported the process. Emancipatory critical social theory underpinned and informed the project. Power relationships between the researcher and the participants can be overtly explored within this theoretical framework. In terms of this particular exploratory study, participatory research appeared to be applicable. The participants are female caregivers of Te Atiawa children. Data collection was done using group interactions and semi-structured interviews in the winter of the year 2000. A thematic analysis of the data was used, in which common themes were identified, compared and discussed. From the analysis of the data of the participants' conversations, key ideas were identified. The major findings have been identified within two main themes. These are: a concept of health is not the same for Pakeha as for Maori, and access issues are still problematic for the participants in this study. Many quotes from the interview participants are included in order to keep the focus of the project on the voices of the women interviewed. In terms of the significant contribution of this research, this study aims to allow voices of female caregivers of Te Atiawa Maori children to be heard. Individual and collaborative interactions offer insights into what is important to them in terms of Maori child health. Clearly, the primary health initiatives promoted by the New Zealand government are not reaching at least some of the people for whom they are intended. The research participants offered their ideas as to how these deficits could be remedied in their community. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1216 |
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Author |
Gage, J.; Everrett, K.D.; Bullock, L. |
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Title |
A review of research literature addressing male partners and smoking during pregnancy |
Type |
Journal Article |
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Year |
2007 |
Publication |
Journal of Obstetric, Gynecologic and Neonatal Nursing |
Abbreviated Journal |
CPIT Repository |
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Volume |
36 |
Issue |
6 |
Pages |
574-580 |
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Keywords |
Pregnancy; Smoking; Male; Parents and caregivers |
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Abstract |
The aim of this research was to gain a more complete understanding of cigarette smoking and cessation during pregnancy by examining the men's role in supporting smoking cessation of their pregnant partners. A search of online databases was made for studies published in the last 10 years, in English, that included three phenomena; pregnancy, male partners, and cigarette smoking. Data were identified and organised according to theoretical, descriptive, and intervention methods of research. A growing body of literature indicates an interaction between pregnancy, male partners, and smoking behaviors. Explicating relationships between these phenomena is necessary for understanding and encouraging behaviours that promote maternal, child, and family health. The researchers conclude that current research highlights a need to further investigate the potential relationships, interactions, and health consequences of smoking behaviours of men and women during pregnancy. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1236 |
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| Permanent link to this record |
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Author |
Deo, Lalesh |
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Title |
Parental needs and nursing response following SUFE Surgery; An interpretive descriptive study |
Type |
Book Whole |
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Year |
2021 |
Publication |
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Abbreviated Journal |
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Volume |
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Issue |
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Pages |
141 p. |
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Keywords |
Slipped Upper Femoral Epiphysis (SUFE); Parents and Caregivers; Child health; Maori children; Pacific children; Paediatric nurses |
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Abstract |
Examines the experiences of parents and nurses in caring for a child following invasive Slipped Upper Femoral Epiphysis (SUFE) repair. Conducts semi-structured interviews with parents of five children, predominantly Māori or Pacific, who underwent SUFE repair, and five paediatric nurses caring for the children and their families in the hospital ward. Offers two perspectives of the journey for these parents following such an injury, from the child's hospitalisation to caring for these children once they are home. Presents and contrasts these perspectives, revealing insights into the parents' ongoing need for support, information and planning for care, and nurses' efforts to meet these needs. Presents implications for nursing practice. |
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Call Number |
NZNO @ research @ |
Serial |
1741 |
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Author |
Duthie, Andrew; Roy, Dianne E; Niven, Elizabeth |
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Title |
Duty of care following stroke: family experiences in the first six months |
Type |
Journal Article |
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Year |
2015 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
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Volume |
31 |
Issue |
3 |
Pages |
7-16 |
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Keywords |
Stroke; Family; Caregivers |
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Abstract |
Uses hermeneutic phenomenology to examine how stroke affects the survivor’s wider
family. Investigates the experience of becoming and being a family member of someone who has had a stroke, during the first six months from the initial stroke. Interviews three participants from the same extended family at six weeks, three months and six months. Identifies the emerging themes and sub-themes of their care for the survivor. |
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Call Number |
NZNO @ research @ |
Serial |
1510 |
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Author |
Fischer, R; Roy, D E; Niven, E. |
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Title |
Different folks, different strokes: becoming and being a sroke family |
Type |
Journal Article |
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Year |
2014 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
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Volume |
5 |
Issue |
1 |
Pages |
5-11 |
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Keywords |
Stroke; Lived experience; Phenomenology; Family; Caregivers; Life change |
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Abstract |
Reports a study exploring family experiences of stroke during the first six months following a stroke. Performs a hermeneutic phenomenological study in which four participants from two Auckland families are interviewed in 2011 and 2012, at three time-intervals within the first six months post-stroke. Identifies three themes of the families' experiences: loss of a life once lived; navigation of an unfamiliar path; re-creation of a sense of normality. Stresses the importance of contact with the health-care team in facilitating the transition to post-stroke life. |
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Call Number |
NZNO @ research @ |
Serial |
1398 |
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