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Author |
Woods, M. |
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Title |
Balancing rights and duties in 'life and death' decision making involving children: A role for nurses? |
Type |
Journal Article |
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Year |
2001 |
Publication |
Nursing Ethics |
Abbreviated Journal |
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Volume |
8 |
Issue |
5 |
Pages |
397-408 |
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Keywords  |
Parents and caregivers; Children; Ethics; Clinical decision making; Nurse-family relations; Chronically ill |
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Abstract |
This article examines a growing number of cases in New Zealand in which parents and guardians are required to make life and death ethical decisions on behalf of their seriously ill child. Increasingly, nurses and other practitioners are expected to more closely inform, involve and support the rights of parents or guardians in such situations. Differing moral and ethical values between the medical team and parents or guardians can lead to difficult decision making situations. The article analyses the moral parameters, processes, outcomes and ethical responses that must be considered when life and death ethical decisions involving children are made. It concludes with a recommendation that nurses should be recognised as perhaps the most suitable of all health care personnel when careful mediation is needed to produce an acceptable moral outcome in difficult ethical situations. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1086 |
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Author |
Mockford, A. |
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Title |
An exploratory descriptive study of the needs of parents after their young child is discharged from hospital following an admission with an acute illness |
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Year |
2008 |
Publication |
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Abbreviated Journal |
ResearchArchive@Victoria |
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Volume |
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Issue |
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Pages |
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Keywords |
Parents and caregivers; Health knowledge; Children; Maori; Pacific peoples |
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Abstract |
This study investigated issues surrounding the high numbers of preventable admissions of young children with acute illnesses, particularly amongst Maori and Pacific children. It focuses on what happens once these children are discharged. Its aims were to find out what the expressed needs of parents were, as they cared for their child, once home. Whilst there has been a small amount of international research undertaken in this area, there is little known about expressed parent need in the New Zealand context. This exploratory descriptive study involved parents of under five year old children, who had been admitted to a hospital, with one of five acute illnesses. Eighteen parents were surveyed over the telephone. This study found the parents expressed a need for reassurance and advice once home, and that they worried about their child getting sick again. It highlighted gaps in discharge planning and support. None of the parents had received a written discharge plan for their child. Only five parents had received either a contact number for advice or a referral back to their primary care provider. This study found that whilst some parents considered their discharge needs had been met, others considered that they had not. Four local discharge practice opportunities to support these families were recommended, these included, providing parents and caregivers with an individualised written discharge plan, giving a contact number for advice after discharge, offering a follow-up phone call in the first 48 hours, and ensuring that all children have a referral back to their primary health care provider. Areas for further research were highlighted, including the need for a larger study to explore and compare the needs of rural and urban parents, and Maori and Pacific parents. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1232 |
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Author |
Murphy, S.E.E. |
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Title |
Through mothers' eyes: The lived experience of caring for a child who has undergone and recovered from a liver transplantation |
Type |
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Year |
2008 |
Publication |
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Abbreviated Journal |
ResearchArchive@Victoria |
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Volume |
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Issue |
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Pages |
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Keywords |
Parents and caregivers; Paediatric nursing; Children; Surgery |
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Abstract |
Mothers, whose children had undergone a liver transplant more than one year ago at time of interview and whose children were outpatients of Starship Children's Hospital, were invited to participate in this research. A Heideggerian hermeneutic phenomenological approach, informed by the work of van Manen (1990) was used. Three mothers of children who had received a liver transplant were interviewed to reveal the meanings of the phenomenon – what is the meaning of lived experience of mothers in caring for their child who has undergone and recovered following liver transplantation? Little previous study regarding mothers' lived experience of caring for their child, who had recovered from a liver transplant, was found in the literature. The emerging themes were punctuated with stress being a consistent feature. Utilising Ruddick's (1983) concepts of maternal thinking, the emerging themes were merged within the three interests governing maternal practice; preservation, growth and acceptability. The absolute capacity for attentive love draws the experience together. An essential theme identified out of the analysis was the concept of survival relating to the unique features of liver transplantation and the consequences of liver rejection and failure. The findings contribute to the understanding of the phenomenon, emphasising the need for good support systems for families of children who have undergone transplantation; assistance in the establishment of maternal coping strategies and regular feedback on the children's progress acknowledging the role and care provided by mothers. |
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Call Number |
NRSNZNO @ research @ 1242 |
Serial |
1227 |
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Author |
Adams-Smith, P.H. |
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Title |
An exploration of issues of primary health services for Taranaki Te Atiawa children based on the expectations and perceptions of their female caregivers |
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Year |
2002 |
Publication |
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Abbreviated Journal |
http://hdl.handle.net/10063/75 |
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Volume |
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Issue |
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Pages |
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Keywords |
Parents and caregivers; Primary health care; Access; Maori; Children |
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Abstract |
The intention of this research is, through collaborative discussion and selective conversations, to explore female caregivers' expectations and perceptions of primary health services for some Te Atiawa Maori children. The research process was developed in a partnership between the Maori women participants and the researcher. In addition, two local kuia actively participated in and supported the process. Emancipatory critical social theory underpinned and informed the project. Power relationships between the researcher and the participants can be overtly explored within this theoretical framework. In terms of this particular exploratory study, participatory research appeared to be applicable. The participants are female caregivers of Te Atiawa children. Data collection was done using group interactions and semi-structured interviews in the winter of the year 2000. A thematic analysis of the data was used, in which common themes were identified, compared and discussed. From the analysis of the data of the participants' conversations, key ideas were identified. The major findings have been identified within two main themes. These are: a concept of health is not the same for Pakeha as for Maori, and access issues are still problematic for the participants in this study. Many quotes from the interview participants are included in order to keep the focus of the project on the voices of the women interviewed. In terms of the significant contribution of this research, this study aims to allow voices of female caregivers of Te Atiawa Maori children to be heard. Individual and collaborative interactions offer insights into what is important to them in terms of Maori child health. Clearly, the primary health initiatives promoted by the New Zealand government are not reaching at least some of the people for whom they are intended. The research participants offered their ideas as to how these deficits could be remedied in their community. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1216 |
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Author |
Watson, Paul |
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Title |
Preschool children frequently seen but seldom heard in nursing care |
Type |
Journal Article |
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Year |
2008 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
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Volume |
24 |
Issue |
3 |
Pages |
41-48 |
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Keywords |
Preschool children; Children's voices; Paediatric nursing |
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Abstract |
Maintains that children's voices are largely unheard in nursing practice. Recommends the need for research that seeks to understand how preschool children experience being ill and how they communicate those experiences to others. |
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Call Number |
NZNO @ research @ |
Serial |
1438 |
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Author |
Wilson, H.V. |
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Title |
Surveillance or support: Divergent discourses in Plunket nursing practice |
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Year |
2000 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Public health; Children; Community health nursing; Plunket |
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Abstract |
Plunket nurses are New Zealand child health nurses who work in the community with the families of new babies and preschool children. Their work is called child health surveillance and this is considered to involve routine and unproblematic practices which are generally carried out in homes and clinics in the context of a relationship with the child's mother (Ministry of Health 1996; Royal New Zealand Plunket Society 1997). However, evidence in the literature that surveillance can have implications for power relations throws doubts on official claims that the relationship between the mother and nurse operates as a partnership (Trout and Polaschek 1996). The purpose of this thesis was to explore the way in which surveillance is constituted within the discourses of Plunket nurses and to examine these discourses for any implications of unequal power relations. Foucauldian discourse theory and poststructuralism, which informed this thesis, provided the opportunity to challenge assumptions about power and knowledge in the child health context. Analysis of the discourses generated by interviews with five Plunket nurses revealed that, contrary to the claims in the official literature, the relationship between the Plunket nurse and the mother is not that of an equal partnership but is constituted in various and unexpected ways. It was through the nurses' discourses of surveillance that the power relations underpinning this relationship were surfaced. While these discourses suggested that many mothers who use the nursing service are actively involved on their own terms, there are a number of women for whom the surveillance activities of the nurse have been shown to be particularly intrusive (Mayall 1986; Clinton 1988; Bloor and McIntosh 1990; Knott and Latter 1999). It may be primarily this unwelcome surveillance which accounts for the considerable number of women who, the statistics show, cease using Plunket services particularly in the early months. It is perhaps for this reason that the nurses in this study locate themselves as being caught between divergent discourses of support and surveillance. Findings indicate that the resolution of this dilemma by abandoning surveillance practices might improve maternal satisfaction with the Plunket nursing service. The author concludes that a child health service responsive to mothers' stated needs rather than institutional requirements or the nurse's own agenda could lead to a more open and equal relationship between mother and nurse. This relationship would be likely to benefit mothers and babies and, at the same time, enhance both nursing practice and nurses' satisfaction with their work. |
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Call Number |
NRSNZNO @ research @ |
Serial |
899 |
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Author |
Mahoney, L. |
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Title |
Making the invisible visible: Public health nurses role with children who live with a parent with a mental illness |
Type |
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Year |
2008 |
Publication |
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Abbreviated Journal |
NZNO Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Public health; Children; Community health nursing; Scope of practice |
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Abstract |
This research uses focus group methodology to examine the public health nursing practice with children living with a mentally ill parent. These children are often neglected, yet are at increased risk of developing mental illnesses themselves. The research data identified the burgeoning impact on public health nurses of such care, and found their role to be primarily assessment and advocacy. |
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Call Number |
NRSNZNO @ research @ 1304 |
Serial |
1289 |
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Author |
Garlick, A. |
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Title |
Determined to make a difference: A study of public health nursing practice with vulnerable families |
Type |
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Year |
2006 |
Publication |
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Abbreviated Journal |
Massey University Library, NZNO Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Public health; Children; Nurse-family relations |
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Abstract |
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Call Number |
NRSNZNO @ research @ 737 |
Serial |
723 |
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Author |
Heap, J. |
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Title |
Enuresis in children and young people: A public health nurse approach in New Zealand |
Type |
Journal Article |
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Year |
2004 |
Publication |
Journal of Child Health Care |
Abbreviated Journal |
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Volume |
8 |
Issue |
2 |
Pages |
92-101 |
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Keywords |
Public health; Nursing specialties; Children; Adolescents |
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Abstract |
This article discusses a child/adolescent-centred primary nocturnal enuresis program and service that is administered by a group of public health nurses in South Auckland. Enuresis is the involuntary passing of urine. Many children and adolescents who are nocturnal enuretics exhibit behaviours such as low self-esteem, withdrawal, less ambition and increased anxiety. These children are often low achievers within the school system and become a problem for their family and school. |
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Call Number |
NRSNZNO @ research @ 708 |
Serial |
694 |
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Author |
Ward, Cynthia; Evans, Alicia; Ford, Rosemary; Glass, Nel |
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Title |
Health Professionals Perspectives of Care for Seriously Ill Children Living at Home |
Type |
Journal Article |
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Year |
2015 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
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Volume |
31 |
Issue |
2 |
Pages |
25-34 |
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Keywords |
Seriously-ill children; Health professionals; Model of care; Complex health needs |
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Abstract |
Reports the findings of health professional's perceptions of beneficial care for seriously ill children and their families. Represents one component of a PhD qualitative evaluation study investigating care provided by a child health trust in NZ. Uses a focus group to identify key aspects of beneficial care and subsequent themes, including: collaboration between health providers, effective communication, expert skills, support for colleagues and after-hours care. availability. |
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Call Number |
NZNO @ research @ |
Serial |
1509 |
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Author |
Deo, Lalesh |
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Title |
Parental needs and nursing response following SUFE Surgery; An interpretive descriptive study |
Type |
Book Whole |
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Year |
2021 |
Publication |
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Abbreviated Journal |
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Volume |
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Issue |
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Pages |
141 p. |
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Keywords |
Slipped Upper Femoral Epiphysis (SUFE); Parents and Caregivers; Child health; Maori children; Pacific children; Paediatric nurses |
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Abstract |
Examines the experiences of parents and nurses in caring for a child following invasive Slipped Upper Femoral Epiphysis (SUFE) repair. Conducts semi-structured interviews with parents of five children, predominantly Māori or Pacific, who underwent SUFE repair, and five paediatric nurses caring for the children and their families in the hospital ward. Offers two perspectives of the journey for these parents following such an injury, from the child's hospitalisation to caring for these children once they are home. Presents and contrasts these perspectives, revealing insights into the parents' ongoing need for support, information and planning for care, and nurses' efforts to meet these needs. Presents implications for nursing practice. |
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Call Number |
NZNO @ research @ |
Serial |
1741 |
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Author |
Watson, P, B. |
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Title |
Positive pressure intravenous access ports on central venous devices in children: An evidence-based review |
Type |
Journal Article |
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Year |
2010 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
NZNO Library |
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Volume |
1 |
Issue |
1 |
Pages |
12-18 |
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Keywords |
Venous pressure; Central venous pressure; Central venous catheters; Catheter-related infections; Children |
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Abstract |
This research aimed to assess the evidence for benefits and risks of positive pressure mechanical valve (PPMV) intravenous access ports on central nervous system devices (CVADs) in children. PPMVs on CVADs have been promoted as preventing occlusion and the need for heparin flushing. A search for primary research to March 2010 was conducted using MEDLINE, EMBASE and CINAHL. There is sufficient evidence that some models of PPMV intravenous access ports on CVADs, when flushed with normal saline, are associated with increased bloodstream infections in children. Further research is required. |
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Call Number |
NZNO @ research @ |
Serial |
1340 |
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