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Author |
McChesney, Ruth; McClunie-Trust, Patricia |
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Title |
Anticipatory prescribing in community palliative and end-of-life care: a realist review |
Type |
Journal Article |
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Year |
2021 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
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Volume |
12 |
Issue |
1 |
Pages |
32-43 |
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Keywords  |
Anticipatory prescribing; End-of-life care; Palliative care; Interdisciplinary team; Community care |
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Abstract |
Argues that anticipatory prescribing and an interdisciplinary workforce could transform primary palliative care. Aims to identify the factors influencing such prescribing in palliative and end-of-life community care. Conducts a meta-synthesis of 7 primary research studies using a critical realist framework. Identifies expertise, teamwork and prioritisation as the factors influencing anitcipatory prescribing in end-of-life care. |
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Call Number |
NZNO @ research @ |
Serial |
1716 |
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Author |
White, G.E.; Su, H.-R. |
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Title |
Am I dying, nurse? |
Type |
Journal Article |
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Year |
2000 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
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Volume |
15 |
Issue |
1 |
Pages |
33-40 |
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Keywords |
Communication; Ethics; Nursing; Palliative care |
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Abstract |
This paper addresses the concept of truth, and debates who should tell it and how it should be told. It explores the cultural aspects of knowing the truth about dying. The question of whether nurses have a moral obligation to tell the truth is explored, and suggests the lack of New Zealand research in this area should be addressed. |
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Call Number |
NRSNZNO @ research @ |
Serial |
631 |
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Author |
Voice, D.M. |
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Title |
Everyday district nurses' experiences revealed through distillation: Palliative care in the community |
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Year |
2006 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
District nursing; Palliative care; Community health nursing; Nursing |
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Abstract |
This modified action research inquiry focused on the everyday, palliative care practice experiences of a group of district nurses. The intent was to develop an understanding of common issues of concern for this group of district nurses when providing palliative home care in a specific community context and to implement practical, achievable strategies in response to these local issues. Five district nurses identified four broad areas for action through four praxis group meetings and comprising one full cycle. These four areas have been named as methods of enhancing support for people and families, possibilities for creatively managing workloads, mechanisms to enrich working partnership with other palliative care providers and possible vehicles for supporting nurses' self care. Implementation of action from this action research project focused on enhancing care and outcomes for people and family served by this group of district nurses in their local community. This study illuminates everyday essences of the district nurse role and the elements articulated by this group in supporting their practice in one New Zealand community. This study also reveals some of the tensions and messiness when employing an action research methodology with nurses in the workplace. The author notes that this research focused on a little known area (palliative care delivered by district nurses in New Zealand) in a local community (a culturally vibrant and ethnically diverse yet with poor health and socioeconomic statistics). She goes on to say that it has resonance with other nurses, particularly those working in community settings who may experience similar issues and concerns. This research also offers important insights for nurses working in any practice setting. |
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Call Number |
NRSNZNO @ research @ 520 |
Serial |
506 |
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Author |
McCormick, Glen; Thompson, Sean R |
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Title |
Provision of palliative and end-of-life care by paramedics in New Zealand communities: a review of international practice and the New Zealand context |
Type |
Journal Article |
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Year |
2019 |
Publication |
Whitireia Journal of Nursing, Health and Social Services |
Abbreviated Journal |
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Volume |
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Issue |
26 |
Pages |
51-57 |
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Keywords |
End-of-life (EOL) care; Palliative care; Paramedic; Emergency services |
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Abstract |
Reviews the international literature on paramedic preparedness to provide palliative and EOL care in in the community, and applies it to the NZ context. Finds that paramedics would like improved education and better integration with traditional care providers, encompassing patients, family, whanau and carers. and that they stress the psychological, spiritual and cultural needs of their patients. |
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Call Number |
NZNO @ research @ |
Serial |
1634 |
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Author |
Lewis, T. |
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Title |
Euthanasia: A Foucauldian analysis |
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Year |
2005 |
Publication |
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Abbreviated Journal |
ScholarlyCommons@AUT |
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Volume |
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Issue |
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Pages |
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Keywords |
Law and legislation; Euthanasia; Ethics; Pain management; Terminal care; Nursing; Palliative care |
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Abstract |
This study drew upon the theoretical insights of Michel Foucault to provide a discursive analysis of the term euthanasia, and the issues surrounding the “right-to-die”. It involved an analysis of primary texts from; nursing, general, and legal literature as well as the media between the years 2002-2004. Drawing upon data researched, the study analyses the main discourses regarding the practice of euthanasia for terminally ill individuals. The two competing discourses that emerged were what the author termed the sanctity-of life-discourse and the right-to-die discourse. The aim of the study was to uncover the discourses understanding of “truth” regarding the right-to-die. The analysis revealed that a small percentage of cancer sufferers (5%) die with their pain insufficiently treated and the right-to-die discourse claims that no individual should have to suffer needlessly, asserting the individuals right to autonomy. Directly opposing this is the sanctity-of life-discourse which states all life is sacred and nothing can justify euthanasia as an acceptable practice in society. These findings indicate the need for effective palliative care and pain management when caring for the terminally ill individual. The legal, ethical and moral implications of euthanasia are many and this study discusses the effects these may have on health professionals involved with the care of terminally ill patients. The study revealed an increasing deployment of the right-to-die discourse in the media and revealed concerns regarding the nursing profession's lack of preparation to deal with euthanasia if it becomes a legal option in end of life care. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1226 |
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Author |
Archer, L.K. |
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Title |
We talk what we do: An exploration of the value, role and function of storytelling in nursing from one nurse's practice perspective |
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Year |
2001 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Nursing; Palliative care; Professional development |
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Abstract |
The role of storytelling in any society fulfils multiple functions such as maintaining culture, holding history, teaching genealogical lessons, imparting wisdom, entertaining, passing on knowledge. The author suggests that nursing, historically described as a craft with an oral tradition, could be seen to be quietly moving away from the practice of storytelling. Or has it? She asked this question and began to realise that her practice and relationships with colleagues had always been based on stories and storying. To explore this phenomenon, she began to describe her day to day practice in story form, and began to position stories she had previously written. In her work of oncology palliative care nursing within a community setting in New Zealand, the stories proved crucial to her role as an educator, and companion of patients and their families. In this paper she examines how she uses story for her benefit, the patients' benefit, but mainly for the benefit of nursing. She examines from her own perspective, some underlying themes that reinforce the need to continue this ancient tradition and explore the role, value and function of storytelling within nursing. |
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Call Number |
NRSNZNO @ research @ |
Serial |
788 |
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Author |
Richardson, C.A. |
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Title |
Ever decreasing circles: Non-curative terminal illness, empowerment and decision making: Lessons for nursing practice |
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Year |
2005 |
Publication |
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Abbreviated Journal |
University of Otago Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Nursing; Palliative care; Terminal care; Psychology |
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Abstract |
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Call Number |
NRSNZNO @ research @ 683 |
Serial |
669 |
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Author |
Nolan, M.; Featherston, J.; Nolan, J. |
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Title |
Palliative care: Palliative care philosophy in care homes: Lessons from New Zealand |
Type |
Journal Article |
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Year |
2003 |
Publication |
British Journal of Nursing |
Abbreviated Journal |
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Volume |
12 |
Issue |
16 |
Pages |
974-979 |
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Keywords |
Palliative care; Attitude of health personnel |
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Abstract |
Drawing on data from a large convenience sample of caregivers in New Zealand, this article argues for a reappraisal of the way in which care homes view death and dying and advocates the more widespread adoption of a palliative care philosophy. Increasing numbers of people are dying in care homes yet little is known about the nature and quality of their deaths. The limited research available suggests that there is a need to promote a philosophy of palliative care that is not confined to the terminal phase of life. However, adopting such an approach appears to be inhibited by a lack of understanding, education and training, as well as continuing reluctance to discuss issues of death and dying in an open and honest way. |
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Call Number |
NRSNZNO @ research @ 1081 |
Serial |
1066 |
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Author |
McClunie-Trust, P |
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Title |
Negotiating Boundaries: The Nurse Family Member Caring for Her Own Relative in Palliative Care |
Type |
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Year |
2010 |
Publication |
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Abbreviated Journal |
Victoria University Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; boundaries; patient-family relations |
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Abstract |
This research illuminates the challenges of living well within one's own family as a nurse caring for her own relative who is dying of a cancer-related illness. Developing a deeper awareness of the consequences of this caring work has been the central focus for inquiry in this research. Nursing requires epistemologies that encompass new ways of understanding how we live within our own families and communities and practice as nurses. The theoretical framework that guides this research interprets the French Philosopher Michel Foucault's (1926-1984) critical history of thought as an ethical project for nursing. It uses conceptual tools developed in his later writing and interviews to draw attention to how discursive knowledge and practices constitute subjectivity in relations of truth, power and the self's relation to the self. The first aspect of the analysis, landscapes of care examines the techniques of discourse as relations of power and knowledge that constitute nurse family members as subjects who have relationships with their own families and other health professionals. The second aspect analyses care of the self and others as self work undertaken to form the self as a particular kind of subject and achieve mastery over one's thoughts and actions.As an exploration of the complex and contradictory subjectivities of the nurse family member, this research illuminates the forms and limits of nursing practice knowledge. It shows how nursing is practised, and the identity of the nurse is created, through intellectual, political and relational work, undertaken on the self in relation to others, as modes of ethical engagement. |
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Call Number |
NZNO @ research @ |
Serial |
1350 |
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Author |
Bray, Y.M. |
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Title |
A migrant family's experience of palliative nursing care |
Type |
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Year |
2004 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; Cultural safety; Asian peoples; Nurse-patient relations |
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Abstract |
The focus of this research was to explore the migrant family's experience in palliative care. In writing this thesis, the author notes that it became evident that cultural safety was a connection that warranted further study in relation to end-of-life nursing care as was illustrated by the intergenerational case study of this migrant family in New Zealand. The use of the case study method of qualitative research enabled the voice of the migrant to be heard and the story of the migrant family's experience to be showcased. The uniqueness of this family's palliative care experience was around the religious and cultural needs and migration as a process of transition from a previous society to a new one. Palliative care was defined by the family approach with strong community support and empowered by culturally safe and appropriate nursing practice. End-of-life illness is a time when cultural perspectives are challenged for patients and their families and religious and cultural practices take on a new priority, regardless of how they have lived life previously. As a migrant nurse living and working in the New Zealand context, the author identifies as an important factor, the nurse-patient interaction as an encounter between two cultural perspectives, the patient's and the nurse as bearer of her own culture. Acknowledging this factor is an important step in developing a culturally safe approach to practice, an approach that proved to be a major ingredient in planning and caring for this patient and his family in end-of-life illness. This study and thesis explores the underpinnings of culturally safe palliative nursing care and identified 'reflexive bracketing' as a useful practice in the process. |
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Call Number |
NRSNZNO @ research @ 846 |
Serial |
830 |
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Author |
McDonald, Christine |
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Title |
Working collaboratively in hospice and palliative care: Sharing time; a grounded theory |
Type |
Book Whole |
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Year |
2018 |
Publication |
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Abbreviated Journal |
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Volume |
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Issue |
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Pages |
230 p. |
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Keywords |
Palliative care; Hospice care; Collaboration |
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Abstract |
Addresses the concerns of health professionals working collaboratively in palliative care. Conducts 25 interviews wit 23 participants to arrive at a theory of sharing time to explain the social process of collaboration while individually managing and maintaining their own areas of concern. Explains the concept of health professionals making time in their work days for and with each other to find common ground. |
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Call Number |
NZNO @ research @ |
Serial |
1784 |
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Author |
Carter, H.; McKinlay, E.M.; Scott, I.; Wise, D.; MacLeod, R. |
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Title |
Impact of a hospital palliative care service: Perspective of the hospital staff |
Type |
Journal Article |
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Year |
2002 |
Publication |
JBI Reports |
Abbreviated Journal |
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Volume |
18 |
Issue |
3 |
Pages |
160-167 |
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Keywords |
Palliative care; Hospitals; Attitude of health personnel; Cancer |
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Abstract |
The first New Zealand hospital palliative care support service was established in 1985. Different service models have now been adopted by various major hospitals. In 1998, a palliative care service, funded by Mary Potter Hospice, was piloted at Wellington Public Hospital. Twelve months post-implementation, the hospital staff's views of the service were evaluated. It was found that referrals to palliative care from hospital specialities outside the Cancer Centre increased. While most doctors, nurses and social workers strongly agreed or agreed that the service positively influenced patients' care and effectively addressed their symptom management needs, spiritual needs were less often met. Over 90 percent of each discipline strongly agreed or agreed that the service had assisted them in caring for patients, but, only about a half agreed that useful discharge planning advice and staff support was provided. Significant differences in responses were found between different disciplines and specialities. One fifth of the staff identified palliative care education needs. Recommendations are made concerning the development of a future hospital palliative care service. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1075 |
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Author |
Sheward, K.A. |
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Title |
Exploring the juxtaposition of end of life care in the acute setting and the integrated care pathway for the care of the dying |
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Year |
2005 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; Hospitals; Communication; Nurse-patient relations |
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Abstract |
The primary aim of this research paper is to draw on the literature to offer some insight into end of life care in the acute hospital setting. The secondary purpose is to provide an understanding of the integrated clinical pathway (ICP) for the care of the dying, consider its influence related to some of the challenges shaping end of life care and the positive effect it can generate on the quality of care experienced. There are significant challenges that impact on both the delivery and receipt of care for dying patients and their families. Six key influential barriers are considered within the context of the acute setting. Communication and the acute environment are two areas that significantly impact on the quality of care delivered, and are explored in more depth. Narratives from nursing and medical staff convey the realities encountered and difficulties experienced when they are unable to provide the care to which they aspire. Stories are shared by patients and families, which reflect on their experience of end of life care in the acute setting, and offer heath professionals some insight into the lives of the people nurses care for. The literature in relation to the development and implementation of the Liverpool Care of the Dying Pathway, and an overview of the Pathway document is presented. The strengths and limitations of its use are considered, alongside its influence beyond the documentation of clinical care. It is not possible to transfer the hospice service into the hospital setting, however the author suggests that through the implementation of the clinical pathway there is an opportunity to transfer best practice guidelines and positively influence the palliative culture in the acute setting. |
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Call Number |
NRSNZNO @ research @ |
Serial |
772 |
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Author |
Falleni, P.M. |
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Title |
Whakaata ikei runga manaaki: Reflection on caring |
Type |
Journal Article |
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Year |
2004 |
Publication |
International Journal of Palliative Nursing |
Abbreviated Journal |
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Volume |
10 |
Issue |
8 |
Pages |
390-392 |
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Keywords |
Palliative care; Nursing |
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Abstract |
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Call Number |
NRSNZNO @ research @ 1073 |
Serial |
1058 |
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Author |
Cavanagh, C. |
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Title |
Dignity and palliative care: A search to discover the true meaning of the concept of “dying with dignity” |
Type |
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Year |
2004 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; Nursing; Case studies; Nurse-patient relations; Terminal care |
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Abstract |
This paper presents an exploration of a foundational goal of palliative care nursing which is to help patients die with dignity. The paper presents this practice exploration as a journey to gain understanding of the concept of dignity; the author notes that it does not avoid the difficulties encountered in practice situations because dying with dignity is unique and curiously also invisible and different for everyone. Much of human life is conducted through stories and much of nursing involves telling and listening to stories. Many of our social institutions are comprised almost entirely of opportunities for telling and retelling stories. Nurses are constantly listening to patients telling them what is going on in their lives and because of this the stories related here are written bold and raw. The three stories explore and reveal in-depth details of nursing practice that evolved and changed after reflection. The paper also reveals and explores the untold and often painful stories that challenge nurses' capacity to offer dignified care. To deepen the exploration towards discovering ways to articulate the complexity of dignity, the author reflected on the nature of the practice changes documented in the stories and then used a range of diverse literature and her love of the paintings and philosophy of a New Zealander, Ralph Hotere, to support her ideas that dignity is indeed a complex phenomenon. |
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Call Number |
NRSNZNO @ research @ |
Serial |
595 |
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