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Author Dickinson, A.R.; Dignam, D. openurl 
  Title Managing it: A mother's perspective of managing a pre-school child's acute asthma episode Type Journal Article
  Year 2002 Publication Journal of Child Health Care Abbreviated Journal  
  Volume 6 Issue 1 Pages 7-18  
  Keywords (up) Asthma; Parents and caregivers; Children; Nurse-patient relations  
  Abstract This exploratory descriptive study informed by grounded theory examines the experience of mothers in managing their pre-school child's acute asthma attack at home. The study reveals that mothers perceive that they are responsible for the management of their pre-school child during an acute asthma episode, a process they described as 'managing it'. This process involves mother in 'working on treatment', 'making the call', 'watching' and 'calming', while the husband/partner, family, friends and health professionals are 'supporting treatment'. This study suggests that nurses and doctors need to move away from the current paternalistic view of health care delivery in acute settings and embrace the concepts of support and partnership in the care of the pre-school child with asthma and their family.  
  Call Number NRSNZNO @ research @ 728 Serial 714  
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Author Trenberth, D. url  openurl
  Title New Zealand families' beliefs about what constitutes successful management of unsupervised childcare Type
  Year 2008 Publication Abbreviated Journal ResearchArchive@Victoria  
  Volume Issue Pages  
  Keywords (up) Children; Parents and caregivers  
  Abstract This study explored what some New Zealand families believe constitutes the successful management of unsupervised childcare. It was designed to increase social understanding and practitioner knowledge of the issue by exploring families' beliefs, practices and perspectives. The researcher was concerned with the professional role nurses may play with this group of children. A qualitative descriptive approach was used to obtain a straight description of successful unsupervised childcare, using the everyday language of the participating families. Data was collected in semi structured interviews with five family groups, and subjected to content and thematic analysis. Findings suggest unsupervised childcare is both choice and solution, though parents are fearful of the legal and social consequences of using it. Context of the care is important, with the child's preference, community context and availability of adults through distal supervision critical components of its success. Trust between parent and child, the use of rules and boundaries to regulate child behaviour, the teaching of skills and strategies to build child competency, and parental support of children while unsupervised are identified by parents as factors linked to success. Parents identify increasing child independence and self responsibility as positive outcomes from the successful use of unsupervised childcare. This study has helped to identify positive factors resulting in good outcomes from which successful interventions could be developed, provides information that will be of particular interest to practitioners and policy makers, and provides a platform to launch larger studies into the issue of unsupervised children.  
  Call Number NRSNZNO @ research @ 1252 Serial 1237  
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Author Chenery, K. openurl 
  Title Family-centred care: Understanding our past Type Miscellaneous
  Year 2004 Publication Nursing Praxis in New Zealand Abbreviated Journal  
  Volume 20 Issue 3 Pages 4-12  
  Keywords (up) History of nursing; Nurse-family relations; Paediatric nursing; Parents and caregivers  
  Abstract Oral history accounts of the care of the hospitalised child in the context of family are used to argue that current practice paradoxes in family-centred care are historically ingrained. The article looks at the post-war period, the intervening years, and current practice, centred on the changing concept of motherhood throughout that time. The conflict between clinical expediency versus family and child needs is explored.  
  Call Number NRSNZNO @ research @ 1113 Serial 1098  
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Author Buxton, J. openurl 
  Title Factors which may influence parental decisions about childhood vaccinations Type
  Year 2007 Publication Abbreviated Journal Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz  
  Volume Issue Pages  
  Keywords (up) Immunisation; Practice nurses; Children; Parents and caregivers  
  Abstract Practice nurses are primarily responsible for the administration of vaccinations in New Zealand, although many other health professionals contribute to the success of the National Immunisation Schedule by providing vaccination information and advice to parents. Vaccination uptake remains relatively low, indicating many parents choose not to vaccinate their children. A literature review was undertaken to gain an understanding of factors which may influence parents when they are making decisions about childhood vaccinations. Four key themes were identified within the literature: Perceived risk; Vaccine safety and efficacy; Child characteristics; and the Influence of health professionals/supporting vaccination structures. Increased knowledge and awareness about influential factors creates opportunities for health professionals and policy makers to develop strategies to increase vaccination uptake. Implications and recommendations are made for practice, with particular emphasis on the role of the primary healthcare nurse.  
  Call Number NRSNZNO @ research @ Serial 919  
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Author Macfie, B. openurl 
  Title Assessing health needs and identifying risk factors Type Journal Article
  Year 2006 Publication Kai Tiaki: Nursing New Zealand Abbreviated Journal  
  Volume 12 Issue 6 Pages 16-18  
  Keywords (up) Infants; Parents and caregivers; Clinical assessment; Risk factors; Plunket  
  Abstract In 2004, Plunket nurses from eight areas around New Zealand participated in collecting data for a research project on health needs assessment practices. This project aimed to examine risk factors identified by Plunket nurses, what areas of health need considered to be priorities; grading of health needs; and how closely the results of health need assessment aligned with the individual clients' deprivation score. The researchers examine the assessment of health needs against the use of the Deprivation Index, which indicates a specific population in a specific area, as a funding model. This study appeared to show there are two distinct groups of clients assessed as high needs: those with risk factors such as family violence and severe parental mental illness, and who may live in an area of 1-7 deprivation; and those with multiple risk factors which include poverty, low education, and/or reluctance to access services and support, and who usually live in dep 8-10 areas. This research supports the anecdotal evidence that significant health needs exist outside the lower deprivation areas.  
  Call Number NRSNZNO @ research @ Serial 974  
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Author Bolitho, S.; Huntington, A.D. openurl 
  Title Experiences of Maori families accessing health care for their unwell children: A pilot study Type Journal Article
  Year 2006 Publication Nursing Praxis in New Zealand Abbreviated Journal  
  Volume 22 Issue 1 Pages 23-32  
  Keywords (up) Maori; Qualiltative research; Access; Children; Parents and caregivers  
  Abstract The aim of this study was to explore with a small number of Maori families their experiences of accessing health care when their children were unwell with a respiratory condition. A qualitative research methodology was used in the study. Participating families were among those experiencing an admission to a children's ward between July and December 2003. Four families were interviewed. They discussed in depth their experience of accessing health care for their unwell children. Data were analysed using thematic analysis, and three common themes were evident: family resources, choice of health service provider and parents' feelings of vulnerability. The findings highlight that while socio-economic status plays a large part in determining the ease with which families can access the needed health care, there are other barriers within the health system which also pose difficulties for Maori.  
  Call Number NRSNZNO @ research @ 535 Serial 521  
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Author Dobson, J. openurl 
  Title Nurses' experiences of parental informed consent in the neonatal intensive care unit Type
  Year 2004 Publication Abbreviated Journal Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz  
  Volume Issue Pages  
  Keywords (up) Neonatal nursing; Parents and caregivers  
  Abstract The Guthrie Test has become the standard screening test for early detection of congenital metabolic disorders for newborn babies in New Zealand and is an accepted part of neonatal care. In neonatal care, decisions are made on behalf of babies usually by their parents and, for the Guthrie Test there is a requirement that health professionals obtain informed consent. This qualitative research utilised focus group methodology to discover what neonatal nurses in clinical practice consider when obtaining informed consent from parents for newborn screening, the Guthrie Test. The convenience sample consisted of seven registered nurses who volunteered to participate in the study. They all practice in the Neonatal Intensive Care Unit at Dunedin Public Hospital that provides Level 3 intensive care to neonates in the Otago/Southland regions. There are proven benefits of the current newborn screening programme and in the experience of this focus group not many parents choose to refuse. These neonatal nurses identified the rights of parents to have that choice and to make an informed decision. The findings from this research indicate the importance neonatal nurses place on patients' rights and the information provided to ensure that their rights are respected. However, the results indicated that there is a need for clarification of the purpose and process of informed consent for the Guthrie Test in the Neonatal Intensive Care Unit. Therefore providing sufficient, relevant information at an appropriate time and manner is considered necessary. The findings will be used to inform discussion related to the provision of best practice.  
  Call Number NRSNZNO @ research @ Serial 921  
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Author Crawford, R. openurl 
  Title An exploration of nurses' understanding of parenting in hospital Type
  Year 2000 Publication Abbreviated Journal Massey University Library  
  Volume Issue Pages  
  Keywords (up) Nurse-family relations; Children; Hospitals; Parents and caregivers  
  Abstract  
  Call Number NRSNZNO @ research @ 812 Serial 796  
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Author Woods, M. url  openurl
  Title Parental resistance. Mobile and transitory discourses: A discursive analysis of parental resistance towards medical treatment for a seriously ill child Type
  Year 2008 Publication Abbreviated Journal NZNO Library  
  Volume Issue Pages  
  Keywords (up) Nurse-family relations; Parents and caregivers; Pacific peoples; Communication; Children; Chronically ill  
  Abstract This qualitative thesis uses discourse analysis to examine parental resistance towards medical treatment of critically ill children. It is an investigation of the 'mobile and transitory' discourses at play in instances of resistance between parents, physicians and nurses within health care institutions, and an examination of the consequences of resistance through providing alternative ways of perceiving and therefore understanding these disagreements. The philosophical perspectives, methodology and methods used in this thesis are underpinned by selected ideas taken from the works of Michel Foucault and Pierre Bourdieu and supported by relevant literature in the fields of media, law, children, parenting, caring, serious childhood illness, medicine and nursing. It is argued that from an examination of interview based texts, parental resistance is an omnipresent but transitory occurrence that affects many of the interactions between the parents of seriously ill children and clinical staff. It is maintained that within these interactions, the seeds of this resistance are sown in both critical decision making situations and in everyday occurrences between doctors, nurses and parents within healthcare institutions. Contributing factors to parental resistance include the use of power games by staff, the language of medicine, forms of symbolic violence, the presence or absence of trust between parents and medical staff, the effects of medical habitus, and challenges to the parental role and identity. Overall, it is proposed in this thesis that parents who resist treatment for their seriously ill child are not exceptions to the normative patient-physician relationship.  
  Call Number NRSNZNO @ research @ Serial 1140  
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Author Gasquoine, S.E. url  openurl
  Title Mothering a hospitalized child: It's the 'little things' that matter Type Journal Article
  Year 2005 Publication Journal of Child Health Care Abbreviated Journal coda, An Institutional Repository for the New Zealand ITP Sector  
  Volume 9 Issue 3 Pages 186-195  
  Keywords (up) Nurse-family relations; Parents and caregivers; Paediatric nursing; Children  
  Abstract This article reports one aspect of a phenomenological study that described the lived experience of mothering a child hospitalised with acute illness or injury. The significance for mothers that nurses do the 'little things' emerged in considering the implications of this study's findings for nurses in practice. Seven mothers whose child had been hospitalised in the 12 months prior to the first interview agreed to share their stories. The resulting data were analysed and interpreted using van Manen's interpretation of phenomenology. This description of mothering in a context of crisis is useful in the potential contribution it makes to nurses' understanding of mothers' experience of the hospitalisation of their children. It supports the philosophy of family-centred care and highlights the ability of individual nurses to make a positive difference to a very stressful experience by acknowledging and doing 'little things', because it is the little things that matter to the mothers of children in hospital.  
  Call Number NRSNZNO @ research @ Serial 1053  
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Author Marlow, S.A. url  openurl
  Title A voyage of grief and beauty: A phenomenological study of the experience of supporting a family member with an intellectual disability who is dying in a community setting Type
  Year 2007 Publication Abbreviated Journal Research Archive@Victoria  
  Volume Issue Pages  
  Keywords (up) Nurse-family relations; Terminal care; Parents and caregivers; People with disabilities  
  Abstract This thesis reports on a research project which explored the phenomenon of supporting a family member with an intellectual disability who is dying in a community setting. The research purpose was to enhance professional understanding of what it is like to encounter this lived experience. Literature back-grounding the phenomenon and philosophical and theoretical constructs embraced by the researcher are outlined. An explanation is given of the hermeneutic phenomenological methodology which was utilised. The main method of collecting research data was through conducting five open-ended interviews with participants who had supported a dying child or sibling. The participants' family members were aged between 3 and 52 years old at the time of their deaths. Their specific intellectual disabilities included Down syndrome, a metabolically induced disorder and a non-identified syndrome. The family members had died from a variety of terminal illnesses and in a range of community settings. Interpretive analysis was achieved through reflexive journaling and hermeneutic intuiting of interview transcripts and field notes. The research findings have been subjected to rhetorical consideration in the light of further literature and poetic texts. Research findings are expressed metaphorically as groups of boulders representing themes and sub-themes. Three major themes were revealed as having impacted on the river voyage shared by participants and their dying family members. These were Interlocked Companionship, Search for New Balance and Permeable Interaction. An assessment is offered of the strengths and weaknesses of the research project. The thesis concludes with recommendations for reflective practice, evidence based practice, service development and areas of future research.  
  Call Number NRSNZNO @ research @ 1144 Serial 1129  
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Author McKey, A.; Huntington, A.D. openurl 
  Title Obesity in pre-school children: Issues and challenges for community based child health nurses Type Journal Article
  Year 2004 Publication Contemporary Nurse Abbreviated Journal  
  Volume 18 Issue 1-2 Pages 145-151  
  Keywords (up) Obesity; Children; Community health nursing; Parents and caregivers  
  Abstract In this paper, literature related to childhood obesity in New Zealand and internationally is explored to identify current issues, and the implications for nurses in community based child health practice are discussed. Themes that emerged from the literature relate to the measurement of obesity, links between childhood and adult obesity and issues for families. Studies that investigated maternal perceptions of childhood obesity found that mothers identified their child as being overweight or obese only when it imposed limitations on physical activity or when the children were teased rather than by referring to individual growth graphs. The implications for nursing in the area of child health practice are discussed. Understanding of the complex and emotive issues surrounding childhood obesity is required when devising health promotion strategies.  
  Call Number NRSNZNO @ research @ Serial 946  
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Author Manning, J. openurl 
  Title Building trust with families in neonatal intensive care units Type Journal Article
  Year 2006 Publication Kai Tiaki: Nursing New Zealand Abbreviated Journal  
  Volume 12 Issue 6 Pages 18-20  
  Keywords (up) Paediatric nursing; Neonatal nursing; Parents and caregivers; Communication  
  Abstract Establishing a trusting relationship is a key therapeutic intervention for nurses working with families of hospitalised children. This article is an exploration of the definition of trust. Specifically, it considers how parents come to trust (or not) nurses in neonatal intensive care unit (NICU) helps to reveal the meaning of parent-nurse trust and how this affects nursing practice. Understanding and meeting parental needs is important in developing and sustaining trust. The medical model of care often dominates in NICU. This is a deficit model that focuses on illness and treatment. However, the use of a nursing framework, such as developmentally supportive family centred care, focuses on recognising and building on the strengths of the family, by fostering trust to equip the family with the capacity to manage their infant's health care.  
  Call Number NRSNZNO @ research @ Serial 976  
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Author McKelvie, R. openurl 
  Title Partnership in paediatric nursing: A descriptive exploration of the concept and its practice Type
  Year 2001 Publication Abbreviated Journal  
  Volume Issue Pages  
  Keywords (up) Paediatric nursing; Parents and caregivers; Children; Relationships  
  Abstract A 50 point research project presented in partial fulfilment of the requirements for the degree of Master of Nursing at Massey University.  
  Call Number NRSNZNO @ research @ 484 Serial 471  
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Author Campbell, K. url  openurl
  Title Experiences of rural women who have cared for their terminally ill partners Type Book Chapter
  Year 2008 Publication Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) Abbreviated Journal Ministry of Health publications page  
  Volume Issue Pages  
  Keywords (up) Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing  
  Abstract This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role.  
  Call Number NRSNZNO @ research @ 776 Serial 760  
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