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Author |
Carter, H.; McKinlay, E.M.; Scott, I.; Wise, D.; MacLeod, R. |
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Title  |
Impact of a hospital palliative care service: Perspective of the hospital staff |
Type |
Journal Article |
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Year |
2002 |
Publication |
JBI Reports |
Abbreviated Journal |
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Volume |
18 |
Issue |
3 |
Pages |
160-167 |
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Keywords |
Palliative care; Hospitals; Attitude of health personnel; Cancer |
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Abstract |
The first New Zealand hospital palliative care support service was established in 1985. Different service models have now been adopted by various major hospitals. In 1998, a palliative care service, funded by Mary Potter Hospice, was piloted at Wellington Public Hospital. Twelve months post-implementation, the hospital staff's views of the service were evaluated. It was found that referrals to palliative care from hospital specialities outside the Cancer Centre increased. While most doctors, nurses and social workers strongly agreed or agreed that the service positively influenced patients' care and effectively addressed their symptom management needs, spiritual needs were less often met. Over 90 percent of each discipline strongly agreed or agreed that the service had assisted them in caring for patients, but, only about a half agreed that useful discharge planning advice and staff support was provided. Significant differences in responses were found between different disciplines and specialities. One fifth of the staff identified palliative care education needs. Recommendations are made concerning the development of a future hospital palliative care service. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1075 |
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Author |
Campbell, K. |
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Title |
Intertwining the role of partner and caregiver: A phenomenological study of the experiences of four New Zealand rural women who have cared for their terminally ill partners |
Type |
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Year |
2004 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Rural nursing; Terminal care; Palliative care; Home care; Nurse-family relations |
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Abstract |
The stories of the women who live and work in rural settings in New Zealand have begun to reveal unique contributions that they have made to their families and community. This research study evolved from a trend the researcher observed as a district nurse providing community palliative care in rural New Zealand; that the majority of carers of those who are terminally in home-settings are in fact women. This qualitative study aimed to explore through guided conversational interviews the experiences of four women who have cared for their terminally ill partners who have subsequently died. The study investigated if these women's experiences were comparable to that of other women in existing palliative care literature. This research project focused particularly on elucidating the women's experience of intertwining the role of partner and caregiver. Heidegger's hermeneutic philosophy informed the methodology because he focused on what it meant to 'be' rather than 'how we know what we know'. The project focused on the meanings the women made of this dual role in their lives. Women already in the role of partner were now faced with the added responsibility of caregiver to meet the complex needs of their loved one. Usually they had no training to prepare them for this experience. The study reveals ways in which the visiting palliative care nurse becomes very important to them. The women's own voices reveal the high level of respect for their partners and address the harsh realities, revealing poignant and striking concerns in their lives. These stories are shared with the intent of enriching nurses' and other health professionals' understanding of the women's experiences. The author notes that understanding these women's experience is not only a way of honouring these remarkable women but more widely it will inform and possibly transform practice through guideline and policy refinement. |
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Call Number |
NRSNZNO @ research @ |
Serial |
822 |
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Author |
Smit, Charmaine |
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Title |
Making self-care a priority |
Type |
Journal Article |
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Year |
2017 |
Publication |
Whitireia Nursing and Health Journal |
Abbreviated Journal |
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Volume |
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Issue |
24 |
Pages |
29-35 |
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Keywords |
Self-care; Compassion fatigue; Burn-out; Compassion; Palliative care |
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Abstract |
Highlights the importance of prioritising self-care for palliative care nurses whose prolonged exposure to work-related stress may result in burn-out. Recommends a self-care plan that addresses individual strengths and challenges, including physical, emotional, cognitive, relational and spiritual. Suggests the use of self-care strategies, such as the identification of professional and personal strengths, and the application of mindfulness and stress-reduction techniques to improve self-awareness. |
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Call Number |
NZNO @ research @ |
Serial |
1548 |
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Author |
Meldrum, L.B.B. |
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Title |
Navigating the final journey: Dying in residential aged care in Aotearoa New Zealand |
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Year |
2006 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; Older people; Rest homes |
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Abstract |
New Zealand statistics project that the aging population of people aged 65 years and over will more than double in the next decade. This has implications for palliative care providers including hospices and hospitals because long-term inpatient care is not generally provided by hospitals and hospices. When dying patients need long-term care, residential settings become an option. The level of palliative care in these facilities is dependent on staff training and numbers. In general, staff are not trained in palliative care, neither do they provide the multidisciplinary facets that define palliative care as undertaken by hospices. This paper describes a practice development initiative using storytelling as the vehicle for introducing the concept of the Liverpool Care Pathway (LCP) for the dying patient into residential aged care settings. With the emergence of a reflective paradigm in nursing the concept of storytelling as a teaching/learning tool has grown. Many staff in residential care settings come from diverse ethnic backgrounds where for some, English is their second language. Storytelling therefore can be a useful approach for learning because it can increase their communication skills. The author suggests that the Liverpool Care Pathway for the dying patient is a model that can be translated across care settings, hospice, hospital, and community. It can demonstrate a framework that facilitates multiprofessional communication and documentation and embraces local needs, culture and language to empower health care workers to deliver high quality care to dying patients and their family/whanau and carers. This paper also explores the role of a facilitator as an agent of change and discusses how the interplay of evidence, context and facilitation can result in the successful implementation of the LCP into residential aged care settings. |
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Call Number |
NRSNZNO @ research @ |
Serial |
683 |
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Author |
McClunie-Trust, P |
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Title |
Negotiating Boundaries: The Nurse Family Member Caring for Her Own Relative in Palliative Care |
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Year |
2010 |
Publication |
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Abbreviated Journal |
Victoria University Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; boundaries; patient-family relations |
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Abstract |
This research illuminates the challenges of living well within one's own family as a nurse caring for her own relative who is dying of a cancer-related illness. Developing a deeper awareness of the consequences of this caring work has been the central focus for inquiry in this research. Nursing requires epistemologies that encompass new ways of understanding how we live within our own families and communities and practice as nurses. The theoretical framework that guides this research interprets the French Philosopher Michel Foucault's (1926-1984) critical history of thought as an ethical project for nursing. It uses conceptual tools developed in his later writing and interviews to draw attention to how discursive knowledge and practices constitute subjectivity in relations of truth, power and the self's relation to the self. The first aspect of the analysis, landscapes of care examines the techniques of discourse as relations of power and knowledge that constitute nurse family members as subjects who have relationships with their own families and other health professionals. The second aspect analyses care of the self and others as self work undertaken to form the self as a particular kind of subject and achieve mastery over one's thoughts and actions.As an exploration of the complex and contradictory subjectivities of the nurse family member, this research illuminates the forms and limits of nursing practice knowledge. It shows how nursing is practised, and the identity of the nurse is created, through intellectual, political and relational work, undertaken on the self in relation to others, as modes of ethical engagement. |
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Call Number |
NZNO @ research @ |
Serial |
1350 |
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Author |
Nolan, M.; Featherston, J.; Nolan, J. |
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Title |
Palliative care: Palliative care philosophy in care homes: Lessons from New Zealand |
Type |
Journal Article |
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Year |
2003 |
Publication |
British Journal of Nursing |
Abbreviated Journal |
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Volume |
12 |
Issue |
16 |
Pages |
974-979 |
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Keywords |
Palliative care; Attitude of health personnel |
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Abstract |
Drawing on data from a large convenience sample of caregivers in New Zealand, this article argues for a reappraisal of the way in which care homes view death and dying and advocates the more widespread adoption of a palliative care philosophy. Increasing numbers of people are dying in care homes yet little is known about the nature and quality of their deaths. The limited research available suggests that there is a need to promote a philosophy of palliative care that is not confined to the terminal phase of life. However, adopting such an approach appears to be inhibited by a lack of understanding, education and training, as well as continuing reluctance to discuss issues of death and dying in an open and honest way. |
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Call Number |
NRSNZNO @ research @ 1081 |
Serial |
1066 |
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Author |
Hammond, S. |
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Title |
Parallel journeys: Perceptions of palliative care |
Type |
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Year |
2001 |
Publication |
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Abbreviated Journal |
ResearchArchive@Victoria |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; Policy; Geriatric nursing |
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Abstract |
The delivery of palliative care within contemporary New Zealand society is discussed, in the light of the recent publication of The New Zealand Palliative Care Strategy (2001). The viewpoint taken is largely descriptive rather than prescriptive, being based on a literature survey of international research and academic theory, which is also informed by the author's professionally gained knowledge. Four different perspectives, comprising a mix of providers and recipients of care are investigated: those of central government planning; specialist palliative care units; aged-care complexes; and patients, family and whanau. As an area of healthcare which current demographic projections indicate will become increasingly significant, the provision of palliative care to residents of and patients within aged-care complexes receives special attention. A metaphor of “parallel travellers” on “parallel journeys” is used to provide a thematic basis to the paper. The lived experiences and perceptions of each group of “parallel travellers” are explored. Difficulties in defining and evaluating palliative care, the implications of main-streaming, the scope of palliative care provision, the educative role of specialist palliative care providers and the current focus on mechanistic outcome measures are discussed. It is contended that the values and goals, both explicit and implicit, of the four specified groups may not at present be sufficiently congruent to optimise the effective provision of palliative care from the point of view of all concerned. While adequate resourcing and a genuinely collaborative approach among healthcare providers are both acknowledged to be critical, the potential for palliative care nurse practitioners to be appointed to the role of “care co-ordinator” alluded to within The New Zealand Palliative Care Strategy (2001), is also seen as pivotal. Insights from a postmodern perspective are offered as one possible way of achieving greater congruence. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1215 |
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Author |
McCormick, Glen; Thompson, Sean R |
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Title |
Provision of palliative and end-of-life care by paramedics in New Zealand communities: a review of international practice and the New Zealand context |
Type |
Journal Article |
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Year |
2019 |
Publication |
Whitireia Journal of Nursing, Health and Social Services |
Abbreviated Journal |
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Volume |
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Issue |
26 |
Pages |
51-57 |
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Keywords |
End-of-life (EOL) care; Palliative care; Paramedic; Emergency services |
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Abstract |
Reviews the international literature on paramedic preparedness to provide palliative and EOL care in in the community, and applies it to the NZ context. Finds that paramedics would like improved education and better integration with traditional care providers, encompassing patients, family, whanau and carers. and that they stress the psychological, spiritual and cultural needs of their patients. |
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Call Number |
NZNO @ research @ |
Serial |
1634 |
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Author |
Rodgers, Vivien; Marshall, Bridget; Hey, Frances; Blackwell, Anna; Lewer, Pip |
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Title |
Readiness for providing primary palliative care |
Type |
Journal Article |
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Year |
2017 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
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Volume |
33 |
Issue |
3 |
Pages |
P. 31-40 |
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Keywords |
Primary palliative care; Aged residential care; SEQUAL |
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Abstract |
Undertakes a pilot study by specialist Supportive Education and Quality (SEQUAL) palliative care team in 5 aged residential care (ARC) facilities in regional NZ. Conducts a clinical staff survey and facility desktop document review to determine readiness, need for and level of support required, to enhance primary palliative care for residents. Identifies lack of experience and palliative care education among clinical staff. |
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Call Number |
NZNO @ research @ |
Serial |
1589 |
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Author |
Cleaver, H. |
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Title |
Reflections on knowing, not knowing and being in palliative care nursing |
Type |
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Year |
2005 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; Nursing; Terminal care; Nurse-family relations; Nurse-patient relations |
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Abstract |
The author notes that responses to questions from dying people and their families are as individual as each nurse, patient, family member, or situation. This is well recognised and an unspoken truth in palliative care practice. This paper explores the subjective nature of knowledge in palliative care generated through capturing moments of practice and subsequent reflections. This demonstrates how the author uses her model of care to open a space that enables the person and their family to find meaning from their experience and articulate what they need at the time. The author identifies her interest in the paradoxical reality of knowing and not knowing and describes how that paradox contributes to her role in supporting individuals' needs within their realities. |
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Call Number |
NRSNZNO @ research @ |
Serial |
511 |
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Author |
Latta, L. |
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Title |
Reflective storytelling to enhance learning from practice experience |
Type |
Book Chapter |
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Year |
2005 |
Publication |
J. McDrury (Ed.), Nursing matters: A reader for teaching and learning in the clinical setting (pp.67-82). |
Abbreviated Journal |
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Volume |
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Issue |
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Pages |
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Keywords |
Terminal care; Palliative care; Teaching methods; Nursing |
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Abstract |
The author looks at the value of using reflective storytelling as a teaching/learning tool in the hospice setting and examines constructs that provide a theoretical underpinning. She also outlines processes that support the implementation of storytelling practice and the creation of a safe space for storytelling. At the end of the chapter, discussion questions are provided by Janice McDrury. |
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Call Number |
NRSNZNO @ research @ |
Serial |
767 |
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Author |
Hall, K.A. |
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Title |
Soothing sounds: An investigation into the value of music in palliative care |
Type |
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Year |
2003 |
Publication |
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Abbreviated Journal |
ResearchArchive@Victoria |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; Nursing; Qualiltative research; Alternative therapies |
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Abstract |
This qualitative study focuses on van Manen's theory of the 'lived experience' in relation to two families and asks the first thesis question. What is the value of music in the care of someone who is dying? Over the course of their loved one's illness these families provided music in the patients home as part of their care. The study also captures the experiences of two nurses who work in the palliative setting, and their use of music in providing holistic care to their patients. Their experiences relate to the second question. How can nurses be assisted in introducing music into their planned care of patients? The results demonstrate the effectiveness of using taped music for someone who is dying, and the reduction in symptoms, such as anxiety, and pain. It also highlights the importance of the individual's choice, and the special moments that can be achieved for both patient and families when music is used in a caring, supportive environment. This encourages communication, especially in the sharing of emotions. This study may be the first qualitative study in New Zealand, that addresses the value of music in palliative care, therefore there is a need for continued research into this therapy as a treatment modality as part of planned care in palliative nursing. |
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Call Number |
NRSNZNO @ research @ 1216 |
Serial |
1201 |
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Author |
Henry, Amy |
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Title |
Staying at home: A qualitative descriptive study on Pacific palliative health |
Type |
Book Whole |
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Year |
2020 |
Publication |
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Abbreviated Journal |
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Volume |
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Issue |
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Pages |
137 p. |
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Keywords |
Palliative care; Pacific health; Community palliative care; Talanoa research methodology; Surveys |
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Abstract |
Develops an understanding of the experiences of, and barriers for Pacific peoples in Canterbury utilising palliative care services. Considers the strengths and enablers for Pacific peoples accessing palliative care services and how such services, including home based palliative care, could better serve this community. Undertakes interviews using a semi-structured question guide, with nine family members who had provided palliative care within the last three years. |
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Call Number |
NZNO @ research @ |
Serial |
1762 |
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Author |
English, Wendy |
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Title |
The moments we meet : lived experiences of rapport for nurses, patients and families in palliative care |
Type |
Book Whole |
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Year |
2018 |
Publication |
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Abbreviated Journal |
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Volume |
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Issue |
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Pages |
135 p. |
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Keywords |
Palliative care; Patients; Palliative care nursing; Connectedness; Person-centred care |
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Abstract |
Undertakes 12 in-depth interviews with nurses, patients and families about their experiences of rapport and inter-connectedness in the context of palliative care. By means of thematic analysis identifies major themes and associated emotions deriving from connectedness or disconnectedness. Links rapport and connection to holistic care. |
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Call Number |
NZNO @ research @ |
Serial |
1644 |
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Author |
Archer, L.K. |
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Title |
We talk what we do: An exploration of the value, role and function of storytelling in nursing from one nurse's practice perspective |
Type |
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Year |
2001 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Nursing; Palliative care; Professional development |
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Abstract |
The role of storytelling in any society fulfils multiple functions such as maintaining culture, holding history, teaching genealogical lessons, imparting wisdom, entertaining, passing on knowledge. The author suggests that nursing, historically described as a craft with an oral tradition, could be seen to be quietly moving away from the practice of storytelling. Or has it? She asked this question and began to realise that her practice and relationships with colleagues had always been based on stories and storying. To explore this phenomenon, she began to describe her day to day practice in story form, and began to position stories she had previously written. In her work of oncology palliative care nursing within a community setting in New Zealand, the stories proved crucial to her role as an educator, and companion of patients and their families. In this paper she examines how she uses story for her benefit, the patients' benefit, but mainly for the benefit of nursing. She examines from her own perspective, some underlying themes that reinforce the need to continue this ancient tradition and explore the role, value and function of storytelling within nursing. |
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Call Number |
NRSNZNO @ research @ |
Serial |
788 |
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